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Uploaded on Apr 6, 2009
I'm baaaaaaack. This is an update video. The video is mainly about my very rare genetic disease, Multiple Pterygium Syndrome, and just life in general with a disability. If you know ANYONE with that disease, please contact me! I am looking for as much info as I can get to help with complications caused by the disease, such as with breathing and the webbed neck. Also, if you want to help by doing extra research and e-mailing me about different treatment options, I'd greatly appreciate it. The other parts of the video talk about life lately with doctor visits, graduating community college, and an update on friends and life in general. THANK YOU for those of you who have e-mailed and commented with sweet compliments and comments sticking up for me!!! It's greatly appreciated, and I mean that. Please watch all 6 parts to this video to get the full effect!!!