Zoe was diagnosed last December with CDKL5, an extremely rare and devastating non-hereditary (random) genetic disorder that affects her neurology. It has rendered Zoe cortically blind, still unable to walk or talk, she suffers daily seizures, and has a host of other difficult symptoms. There are currently no treatments and no cure for this disorder.
All of that said, this video represents the impressive progress Zoe has made over the last year. We are so proud of her daily optimism and strength. In addition to huge strides with her head control and overall strength, Zoe has learned to sit confidently on her own, kneel up at will, and can even stand up with only minimal assistance. She has also begun to use her eyesight, if only rarely and briefly at this point, so you will see several shots that show her taking a visual glance at the camera.