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Published on Sep 2, 2011
In this video—presented by the National Heart, Lung, and Blood Institute, part of the National Institutes of Health—Nicholas H. and his mother, Bridget, talk about life with sickle cell disease. Nicholas was diagnosed with sickle cell disease soon after he was born. He suffered from hand-feet syndrome as a baby and had his gallbladder and spleen removed at age 5. Penicillin, hydroxyurea and other medicines have helped him and his family manage the illness and the severe pain crises that can result in hospitalization. Now 15 and an honor student in school, Nicholas enjoys "hanging out," listening to music, playing video games, wrestling and learning Brazilian jujitsu.