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OHIO PKD ADVOCACY: United On The Hill

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Uploaded on Feb 25, 2010

Mara Weber: Ohio PKD Advocacy Champion is featured here with Northeast Ohio Chapter and Central Ohio Chapter advocating for a cure for PKD. http://www.pkdcure.org/centralohiocha...

United on the Hill is our annual legislative and public policy conference in Washington, DC. After participating in advocacy training, we spend a day on Capitol Hill meeting with our members of Congress, to both raise awareness for PKD and discuss our legislative priorities for the year. PKD Foundation: http://www.pkdcure.org

Chapters are groups of volunteers PKD patients, family members and friends just like you who want to learn, connect and act in their own hometowns and, at times, on more national and global levels. In fact, Chapters have been forming to fight PKD since the 1980s, funding research, telling others about the disease and providing one another with help and hope a true sense of community.

Become a Facebook fan and join our community: http://www.facebook.com/pkdcentralohio

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