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Published on Feb 27, 2014
What could be worse than finding out that your little child has a life-threating disease and... there's no medicine available!? How helpless would you feel to see a struggle without a solution? More research is vital!
There are over 6.000 rare diseases, but disease specific treatment is only available for 50 of them! Most rare diseases are severe and invalidating. In the Netherlands only, there are already over 1 million people affected by a rare disease. 250 million live with a rare disease worldwide. Seperated it's rare; combined it's very common!
The Dutch Rare Disease Foundation (ZZF) and Genzyme present this movie to raise more awareness for rare diseases. An intriging dance symbolises the urge of treatment. Again.. more research is vital!