 Thank you. And now we will move on to Paul Meilmeier from NORD to give us a couple more minutes of comments Thank you, and I don't have slides, but we can leave this up here because it makes me look more official So I'm gonna try to be shorter than five minutes So if any of you five o'clockers missed your flight you don't harbor resentment against me I'm just have just a couple comments to share from NORD's perspective and For those of you who aren't fully familiar with NORD We're a national nonprofit organization Advocating for all 30 million Americans with rare diseases, and we have various services and offerings And I invite you to go to our website and if you are curious So now on to the substance I have been thinking throughout the presentations today a question that keeps occurring to me Which is how visible do we really want the UDN to be and this is solely from a resource standpoint I know with an out-organization I've talked about UDN UDP before and we at times have been hesitant in really publicizing the work of the UDP and UDN Simply because we would not want to open up the coordinating center to an absolute flood of applications Many which might be entirely inappropriate for the UDN and UDP to to to look at so I think over the next five years if What bill said was correct and that's there's a possibility for having three times as many patients in the next Five years as we have already in the UDP and UDN scene then what? Avenue should we Explore for better publicizing the UDN UDP because I think there is absolutely the supply of patients that would Desire to to to the take part in the UDN However, I think there is still a great amount of Unawareness around the UDN and UDP partially do our own fault just because we we in the patient organization community haven't Fully publicized the opportunity and in my role I am very lucky to be able to go around the country and actually talk with many rare disease and undiagnosed disease patients And in talking with undiagnosed disease patients There are very few who are actually even know about the UDN and UDP and I I asked them Okay, we'll have you talk with your doctor about potentially applying to the NIH undiagnosed disease program They don't know what it is. They just they they don't and I I wonder if this is Partially due to the fact that currently UDN is only limited to certain areas of the country certain Metropolitan areas and that if we were to go to you know Fargo, North Dakota or or somewhere in Billings, Montana That there would essentially be no absolutely no knowledge about the UDP and UDN and that's There are obviously undiagnosed disease patients there and so how better do we reach those patients? How better do we reach those physicians? And I'm not necessarily saying we need to have a whole huge campaign to reach every single first responder out there But maybe the second responders The the the physicians that the the initial primary care physicians would contact So for the areas of the country that are not necessarily being touched by the current UDN network I wonder potentially the UDN sites currently within those networks within the network could be responsible for Some kind of proactive outreach to certain areas of the country that doesn't have a UDN site right now or in partnering with the research facilities and And hospitals in those areas just to make sure that they're aware that there's opportunity to apply to the UDN and that so these undiagnosed patients have that last last hope hotel as As Donna talked about Going forward for the next five years I already touched a bit on the expansion of the UDN not just domestically, but also internationally I'm very very excited to be part of the effort to expand the UDN Internationally to the UDNI And I already know there's there's very wide patient support internationally for that effort as well We've been participating with Euroritus with the Wilhelm Foundation Canadian organization for rare disorders has been involved in the past And I already know within those organizations there are discussions of Establishing kind of an international consortium of patient organizations interested in undiagnosed diseases And that organization would be able to better publicize the needs of undiagnosed patients internationally And currently there's actually really no equivalent even nationally and so that's that's something that's Avenue that could be explored within the UDN outside the UDN possibly as a public-private partnership between two between the two But yeah, just just another avenue for consideration And then one final thought regarding the the patient assistance program that the Nord operates for the For the initial baseline testing a patient assistance programs are inherently just a band-aid They are a band-aid that they're not a fix to to an inherent problem whatsoever This is the same with therapeutics. This is the same in premium assistance programs. And so The the viability of a patient assistance program that's funded by donations is no by no means a long-time fix And so instead there does need to be probably a more concerted effort to find how best To allow patients who need these baseline testing who are not able to access it to work through insurance to to potentially either through the UDN or through the Physicians themselves to the better advocate for the coverage of that genetic testing that initial baseline testing so So so such a patient assistance program is no longer necessary So I'll close just again reiterating our support for the UDP in the UDN I know it has very very wide support across the rare disease patient organization community I talked with a couple of my colleagues before this meeting and when they heard that there was even the slightest potential of The UDN and UDP not being reauthorized for five years Or not even only that but when we come to the five-year time period five years from now And it has to find a new home that it could possibly cease to exist That was very obviously unconscionable for most of the organizations or all the organizations that I have talked to over the past Not only before this meeting but over the several years that we've been working with the UDP. So thank you