 Adi was born in July of 2016. We loved being outside and going for walks and just enjoying that newborn stage. Adi was about four months old when I started noticing some symptoms. At the time she was sleeping more than a normal four month old and she started vomiting and we were really concerned that it was more than your typical infant vomit. So we first brought her to the pediatric emergency room at Joseph Edmondson's Ari Children's Hospital and that's where we first were admitted and knew that evening actually that she was diagnosed with a brain tumor. A plan was started to take out the tumor with surgery. She spent the next 48 hours in the ICU intubated and induced coma while the doctor's surgeons prepared to do surgery. We soon met Dr. Hansen within the first few days of being admitted and he basically came by every day ever since then so that's when we really started getting closer relationship with him and working with him on a daily basis for her treatment. Come to find out he was really working behind the scenes to develop a very unique treatment plan for her. He knew that the type of tumor she was diagnosed with which is an embryonal tumor with multi-layer rosettes referred to as ETMR. It was extremely rare and aggressive and he knew that your typical treatment would not generate the results we wanted so he was putting pieces of the puzzle together and really thinking about how we could do a more aggressive and effective treatment that had quite frankly never been done before. All of Addie's treatment was done in Hackensack because of Dr. Hansen. Once we found out the type of tumor that Addie had and that the percentage of her chance of living was less than 10% we were completely destroyed. We ended up doing several rounds of chemotherapy as well as two different surgeries to actually the first one to debulk the tumor and the second one to remove what was remaining of the tumor after several rounds of chemo. Addie has been in remission for approximately two years. We are just so grateful now Addie is a half-eight three and a half year old. She has started preschool that she absolutely loves. She's so social she enjoys being around other kids and people so much. We have been so grateful to have met Dr. Hansen and have them work with Addie to develop this treatment for her otherwise we don't know that she would be here today.