 Okay, thanks very much Kate and good afternoon everyone, it's lovely to be with you and I understand I have about 10 minutes to take you through a bit of a tour of consent issues that we have had to organise over the last 10 or so years when it comes to getting consent for video and audio recorded interviews that we conduct as part of our research. But first of all I'd just like to take you through a couple of websites but before I do that I'll just tell you briefly about this sort of work that I do and then I want to give you a quick tour of a couple of websites so you can have a look at the sorts of video and audio recordings that we provide to the public. And then I want to take you through our consent and copyright forms which I hope will sort of give you a little more background about the sorts of, the types of consent that we get from our participants. So the sort of work, some of the work that I've been doing over the last 10 or 15 years is gathering research through qualitative in-depth interviews with participants around their personal experiences of long-term conditions. And this is part of a worldwide consortium of researchers. So I'm just to recap, I'm talking about the sort of research work that we've done over the last 10 or 15 years where we interview people about their personal experiences of long-term conditions and these are rigorous systematic qualitative research studies which and they're the same as any qualitative research study that you would do. The difference is that we use these data and analyse the data that we gather to then make publicly available topic summaries which would be, if you're a qualitative researcher would be based along the lines of themes, thematic analysis. And these topic summaries are illustrated with video clips from the video recorded interviews but if people don't consent to video clips they do consent to audio or even just written transcripts. So I wanted to give you a very quick tour through a couple of our website. So the first one that I'd like to show is the Health Talk Australia site. What I'd like to show you is, yes this is the Health Talk Australia site. So on this site you can see that it has a number of modules. I'm not sure that I've actually got control over that. Just scrolling down to show people, we've done a number of different research projects. If you click on the aging, just back up a bit, there's the aging module on the right hand side. If we click on that you will see down the left hand side of that screen there are a number of, under overview there are a number of different topic summaries and if you click on one of those then so if we click on say the business of living and in there there's a whole lot of different, so you could click on say interests and activities and that should bring up. Going down a little, there's a series of video clips that you can click on that are drawn from the research that's been conducted into these different conditions. If we just scroll back up so that you'll see these two clips that you could click on have been anonymised. These people didn't want the video to be shown but they're happy for the audio to be played. So we still make these people's stories available but we do it at the level in which they are comfortable. If I could now show you the healthtalk.org, the UK website, I just wanted to show you that because they have done over 100 modules and it has a similar setup whereby you can find a particular condition, it might be anything from arthritis to cancers, all sorts of different conditions and you can again on the left-hand panel find a topic summary relating to that particular condition which is based on the thematic research that we've done. Then you can click through there and you can find video and audio recorded clips. So in the interest of time I'd love to be able to take you for more of a tour but I know that we're up against time here so what I'd like to do now is go back to showing you the consent and copyright forms. The consent form and you should be able to open this and have a look at this yourself because I've made these available. Please note they're copyrighted. The consent form is a standard consent form as you would have for any ethics approved study and it outlines the usual ethics related issues around giving consent that the participants can also tick a box to indicate if they give consent for video or audio recorded sections of the interview. So the consent form just as you will see it's very standard that people consent to understanding the purpose of the study. They've read the participant information statement. They've had any questions answered. They can withdraw from the study at any time. The personal information is collected over the course of the project and stored securely that they can tick a box to show they're happy to be identified or they don't want to be identified and they want their identity to be anonymous but they wish to have the transcript of the interview identified under a pseudonym which they can then write in and that they consent to audio, video and or reviewing transcripts. So that's just the standard consent form. With the copyright form, this is the more important one I guess, the more relevant one for our listeners today. So this is a copyright transfer form and I'll just take you very quickly through this. So it's about future use of my interview and I intend that my interview will be available to the Health Talk Australia website that the study investigators have approved it for use in teaching, broadcasting, research, the making of audio, visual resources and other publications with this particular form. It's also available for on the Centre of Research and Excellence in Severe Asthma website and that it will be the material may be shared with academics, broadcasters, developers of training courses, website developers. You can see that it's quite comprehensive. They can also remove or retract their copyright. They can, if I decide that I no longer want my interview to be used, it will be removed. But I'd like to stress that this very, very rarely happens. In the thousands of interviews that have been done using this method around the world, there would only be a handful of people who change their minds later on and we will wherever possible. We can definitely remove it from the website. But if transcript data has been used in publications, of course, we can't remove that. The final thing I would like to say is that people do give consent for video and audio recordings. They willingly do that and they usually say it's because they hope that it might help other people who are in a similar situation to their own. And once we show people how the websites work, for those of them who are a little unsure, they will, most of the time, they will then consent to having their interview video recorded. A small percentage don't consent, but then they do consent to the audio and the transcription.