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Published on Aug 30, 2012
Amye Leong shares her story of being diagnosed with rheumatoid arthritis at age 18 ---and later with Sjögren's syndrome and osteoporosis --- and her journey to become a patient advocate, speaker and author who defies disability. About her role as the international spokesperson for the Bone and Joint Decade, Leong says, "One of things I have been a strong advocate for is the engagement of patients at the research level. And that sounds really bizarre: 'We're going to study you; we donít want to talk to you about your cells!í But I would propose to you that when you engage us in the development of research design, we will open your eyes in ways that you will find very beneficial."