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Published on Oct 18, 2011
Katelyn Hope is 15 months old, and was born with a bilateral cleft lip and palette that was quite severe. At birth, she suffered respiratory distress and was placed on oxygen and a feeding tube, as she was unable to nurse. After further investigation, it was determined that Katelyn was born with a chromosome deletion that is so rare, that information is extremely limited about her prognosis. Katelyn's mother, Wendy, talks to us about her experience and tells us her story.