One Day More is a support group for parents who have received a
difficult pre-natal prognosis. This could be news of terminal illness
(fatal foetal abnormality) or disability.
The parents featured on this video all received a distressing
prognosis about the health of their unborn baby.
Cliona and Maura both gave birth to babies who only lived for a very
short time. Cliona's son John Paul was born with anencephaly and lived
for just 17 minutes. His whole family got to spend these precious
moments with their little brother, son, grandson. Maura's daughter,
Laura lived for 7 months with Edward's Syndrome. Her family was lucky
enough to be able to have her at home for Christmas.
Liz was told that her son's limbs were not growing and an abortion was
suggested by medical staff. Liz says she would have benefitted hugely
at the time from speaking to someone who had been through a similar
experience to offer words of comfort and support.
Helena was repeatedly given poor pre-natal prognoses for her baby
Luke. The pregnancy was difficult and all predictions indicated that
Luke would be born with a serious illness and disability. After a
stressful and heartbreaking 9 months, Helena gave birth to a healthy
baby boy.
All of the parents in this group want to promote peri-natal hospice care and would like to be contacted by anyone going through a similar experience as them.
For more information go to: onedaymore.ie
