A Caregiver's Guide to Alzheimer's Disease





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Published on Nov 1, 2013

On September 7, 2013, NDSS and the Down Syndrome Association of Los Angeles co-hosted the Age of Change conference. Over the course of the day-long conference, presenters shared valuable information about a variety of topics relating to aging and Down syndrome.

Mary Hogan, MAT, Family Advocate From 1990-2010, Mary acted as advocate and guardian for her late brother Bill who resided in a group home in NY State. After her brother's diagnosis of Alzheimer's disease in 2005, efforts to advocate increased significantly with an emphasis on aging in place and quality of life. Since Bill's premature death in 2010 at age 49, she has worked to facilitate the availability of information for individuals and families facing the dual diagnosis of Down syndrome and Alzheimer's disease. Most recently Mary has focused on the inclusion of individuals with intellectual disabilities in the National Plan to Address Alzheimer's Disease. She was a contributing author of "Aging and Down Syndrome: A Health and Well-Being Guidebook". Mary is currently a member of the Steering Committee of the National Task Group on Intellectual Disabilities and Dementia Practices. She is a retired Special Educator with 39 years of experience and lives in Eliot, Maine with her husband Jim, who made sure that Bill had his three primary wishes: a good haircut, a cup of decaf hazelnut and an occasional Sam Adams!

Slides from this presentation are available at https://www.ndss.org/Resources/Aging-....

Learn about NDSS and Down syndrome at http://www.ndss.org.

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