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Published on Jun 28, 2016
The video "Hand in hand for World Scleroderma Day 2016" provides a glimpse of what it's like for the thousands of people worldwide affected by scleroderma and digital ulcers.
By recognizing World Scleroderma Day 2016, we acknowledge the importance of the tireless work of many patient groups to improve the lives of people living with scleroderma.
Special thanks to our Spanish Actelion team and their local patient group, Spanish National Scleroderma Association (Asociación Española de Esclerodermia), which provided us with access to the patients featured in our film. These patients generously share their experiences and give us insight into the challenges that the condition brings, and importantly, provided positive advice for patients how they have been able to adapt to everyday living.