Rating is available when the video has been rented.
This feature is not available right now. Please try again later.
Published on Nov 8, 2011
Sage Bionetworks has developed and is releasing, at Partnering for Cures, the testable alpha of a standardized informed consent protocol and corresponding open technical implementation for creating, storing, and sharing public genomics data for research purposes. It can be thought of as an application programming interface for a very specific kind of consent to sharing genomes in a standardized way, one that can allow a multiplicity of applications that leverage that consent. Patients could give consent via smartphone apps or the Web, and hundreds of different studies could access a single set of consent forms, all legally interoperable.
Presenters John Wilbanks, Senior Fellow, Kauffman Foundation Stephen Friend, President, Sage Bionetworks