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Published on Jun 6, 2012
Epidermolysis Bullosa, or EB, is a devastating disease that affects 1 in 50,000 live births. There are precious children who are forced to suffer each and every day. EB has forced them to go to battle everyday and to fight to survive. The slightest amount of friction, even the softest of touches can cause severe and excruciatingly painful blisters. There is no cure. Many of these children do not make it to their first birthday. Their days are spent bandaged from head to toe and full of constant pain, suffering the many complications that come with EB.
I am dedicated to raising awareness and being a voice for these children because I refuse. I refuse to wait for someone else to do something that I myself can do. I cannot stand to watch another child suffer when I have the ability to help make a change. I refuse...do you?
To Join this movement, please visit www.irefuse2012.eventbrite.com