From Sarah: My 7-year-old brother, Jacob, was diagnosed with Duchenne, an extremely fatal muscle disease that affects 1 out of 3,500 boys. Currently there is not a cure, and life expectancy is between the ages of 18-25--we are literally in a race against time.
I recently wrote "Run Away" for my brother Jacob, and for ALL boys with Duchenne. I donated "Run Away" in its entirety to CureDuchenne.org. My goal is to bring major awareness to Duchenne and stop its destructiveness. In this regard, the number 79 is significant: there are 79 exons in the dystrophin gene (dystrophin is missing in the body of a child with Duchenne).
I'm using that number to hopefully gain the vital awareness we need for this disease. For the next 79 days, every single day I will release a different video of a person performing "Run Away" in their own unique way. 79 talented and caring individuals have decided to be a voice for these young men and to help ALL run far, far away from Duchenne muscular dystrophy...Forever!