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Published on Jun 8, 2012
(06/08/12) YORKTOWN - A law named after a little girl in Yorktown is one step closer to becoming a reality.
The state Senate has passed "Hannah's Law," named after Hannah Devane, which was drafted to end insurance-coverage nightmares for children with a special medical condition.
Devane has a very rare condition called eosinophilic esophagitis, which doesn't allow her to digest real food. Four years ago, her insurance company had stopped paying for the specialized formula that keeps her alive and healthy. "The reason why they won't is, they say it's a food supplement for our child. When, in fact, it's not. It's my child's only source of nutrition. So, without this formula, my child couldn't live," says Hannah's mother Jessie.
The situation prompted state Sen. Greg Ball to sponsor a bill that would require insurance companies to pay for the formula which, right now, costs the Devanes close to $15,000 annually.
Hannah's Law now has to be passed by the state Assembly and approved by Gov. Andrew Cuomo.