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Published on Dec 4, 2018
Beau is a bright bubbly 6 year old, with the most infectious smile ever. He loves tractors and football and his favourite team is Stoke City.
His best friend is his twin brother Seth. They spend all their time together giggling playing tractors and getting into mischief, but as the boys get older Beau is beginning to notice he is not the same as his brother, as Beau cannot walk
Beau & Seth were unexpectedly born 14 weeks premature weighing only 710g. They spent the first four months of their lives in hospital. At 7 days old Beau contracted Necrotizing Enterocolitis (NEC) Dr’s told us to expect the worst as his bowel had perforated. That was the first of three life saving surgical procedures that had to be performed on his bowel.
When Beau was 2 1/2 years old he was diagnosed with spastic diplegia cerebral palsy. The doctor explained my son had ‘dodgy legs’, and his hands were also slightly affected, because his brain is sending incorrect signals to his muscles, which causes tightness/stiffness in his legs and arms. Walking is something lots of us take for granted, but for Beau it is something that he is working tremendously hard for. Beau always gives 100% effort, but to help him on his way, and to fulfil his dream of walking with his brother, we are raising funds to send him to America for an operation. Selective Dorsal Rhizotomy, a special technique that involves sectioning (cutting) some of the damaged sensory never fibres which are causing the muscle stiffness/spasticity that come from the muscles that enter the spinal cord.
£75,000 is needed to cover, the cost of the surgery, and Beau’s rehabilitation after the surgery.