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Pt. 1 - A Spectrum of Perspectives: Native Peoples and Genetic Research

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Published on Jun 27, 2014

Session 01
9:00-9:15am: Welcome & Invocation
Dr. Eric Green, National Human Genome Research Institute (NHGRI), National Institutes
of Health (NIH)
Director Jacqueline Pata (Tlingít), National Congress of American Indians (NCAI)
Dr. David Penney, National Museum of the American Indian (NMAI)

9:15-9:50am: Framing the Conversation Dr. Malia Villegas (Sugpiaq/Alutiiq), NCAI
Vence Bonham, J.D., NHGRI, NIH

9:55-11:20am: Can Genetics Research Improve Native Health?

Panelists:
Dr. Francine Gachupin (Pueblo of Jemez), University of Arizona Cancer Center
Dr. Jeff Henderson (Cheyenne River Sioux Tribe), Black Hills Center for
American Indian Health
Terry Powell, Alaska Area Specimen Bank Working Group

Moderator: Dr. David Wilson (Diné), Society for Advancement of Chicanos and Native
Americans in Science

This meeting is co-hosted by the National Congress of American Indians, the National Human Genome Research Institute, and the National Museum of the American Indian as part of the Genome: Unlocking Life's Code exhibit at the Smithsonian's National Museum of Natural History. Our goal in hosting this Symposium is to demonstrate the range of perspectives in Native communities on genomics, highlight key topics for ongoing community conversation, and create a video recording of the conversations that can be shared with Native communities as they host similar conversations across Indian Country. We plan to feature four panels of speakers—including Dr. Ron Whitener (University of Washington), Dr. Nanibaa' Garrison (Vanderbilt University), Dr. Sarah Anzick (NIH/Rocky Mountain Laboratories), Dr. Rosita Worl (Sealaska Heritage Institute), Valerie Segrest (Northwest Indian College), and Dr. Francine Gachupin (University of Arizona)—who will discuss the following topics:
Can genetics research improve Native health?
The ethics of blood
Genomics & ancestry: Ethics, origins, and policy
Insights from the field: Next generation Native...

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