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Published on May 7, 2014
Respiratory Decisions in ALS
Whenever possible, it is recommended for ALS professionals to be present when people and families fighting the disease view the videos. This will allow the families to ask questions about their individual circumstances. It is also recommended that ALS professionals consider each person's stage of progression to gauge the most appropriate time to view each video.
A series of three educational videos, developed through a collaboration with The Forbes Norris ALS Research and Treatment Center and The Les Turner Foundation, guides people and families through the process of evaluating and making important decisions about respiratory care as the disease progresses. These videos are also an excellent resource for medical professionals who are less familiar with ALS, the disease progression and the available care options.
This video series hopes to help with those important questions about respiratory care decisions throughout the course of a person's journey with ALS. The segments are designed to be viewed separately.
Video 3 -- Your Decisions for Your Quality of Life As there are many options, there are many differences in what quality of life means to different people. This video discusses some of those situations and can help with understanding what respiratory options will help enhance quality of life.
The videos are best understood when viewed with one of your ALS professionals or care team.