 Have you ever felt frozen, trapped, or paralyzed in fear? Most likely you have at some point or another. But did you know that there are people who live trapped in their bodies all the time? These people have a condition called FOP. FOP is a disease where muscles and ligaments turn to bone. Bone formations occur across joints, creating a second skeleton and severely limiting mobility. This genetic condition affects one in two million people worldwide. My dear sister, Heather Niles, was one of those people. She was wicked smart with a snarky sense of humor. She helped teach me to read and sew and inspired me to play the saxophone and be a great babysitter. In return, I, the obnoxious little sister, read her diary and screamed at her friends over the phone. Typical sister relationship. Not so typical was watching her struggle with months-long, painful flare-ups. Watching her go to college early so she wouldn't lose the ability to walk before getting there. And listening to her fears about getting older in her 20s and 30s and losing the independence that she so desperately loved. I know the hopelessness of having a loved one living in pain with no effective treatment or cure. IFOP is an organization that works to combat that hopelessness. They fund research, they create and distribute educational materials for families and critically medical professionals who often have no idea what FOP even is. They advocate for members and critically provide support networks for those living with FOP. I can't tell you how many times IFOP has helped our family. Whether it was connecting us with other people struggling with FOP or providing materials at the middle of the night at the last minute when Heather found herself in the ER. They do extraordinary work. The community is so extraordinary that 75% of all IFOP funding comes from FOP families themselves. 75%. But they could use some help. Right now, FOP research is working on groundbreaking clinical trials and drugs which might prove to effectively treat FOP and prevent bone formation. This is a pivotal moment in the history of FOP. Now is the time to reach out and learn a little bit more about FOP or hopefully lend some funds to the research effort. So how can you help today? Well, first go to projectforawesome.com and search the videos for IFOP-A. Find my video and I want you to vote on it. Votes are like gold. Then go to the Indiegogo page and get yourself a little something awesome. There's tons of swag from YouTubers and cool little limited time perks. Finally, stay on the website and look at some other videos. Share them with your friends. The project for awesome is all about supporting charities. Charities like IFOP-A or Partners in Health. If you are looking for more information about IFOP-A, there are tons of links in the doobly-doo below. And thanks for watching everyone. Don't forget to be awesome.