 The Rare Connect project aimed to develop a virtual platform to connect patients, families, and healthcare professionals across borders to share knowledge and experiences related to rare diseases. The project was successful in its goal, as it provided a space for people to connect and exchange information about rare diseases. Additionally, the project helped to reduce costs associated with travelling to see specialists, as many patients could now receive consultations remotely. This article was authored by Victoria Antoniadoe and Ademose Hadjapinaeus.