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Published on Mar 22, 2009
Andy Trevino has spent more than 1,000 days in the hospital. Hes celebrated birthdays, Christmases and New Years Days surrounded by nurses and doctors. Born with Primary Immune Deficiency (PID) NEMO, an extremely rare genetic mutation that caused his immune system to fail, Andys prognosis was dire. His parents were desperate to save him. With only 62 cases of PID NEMO worldwide, there was little medical precedent to help them. Andy received gamma globulin infusions every two weeks to boost his immune response and a daily cocktail of 13 different medications that kept him relatively safe. He had a very isolated childhood, as contact with the germs of the outside world could prove deadly. Childrens Hospital Boston immunologists recommended a stem cell bone marrow transplant to replace parts of Andys immune system. In October 2004, Andys baby sister Sofia became his donor. Stem cells from her umbilical cord and her bone marrow were used in the transplant. It was a success, and today Andy lives a relatively normal and healthy life filled with baseball, soccer and football. Its no wonder that Andys favorite phrase is, Sofia is my favorite sister.