How Patients Are Creating Medicine’s Future: From Citizen Science to Precision Medicine





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Published on Apr 24, 2018

* Prof. Jason Bobe, MSc (Mount Sinai School of Medicine)
* Ernesto Ramirez, PhD (Fitabase)
* Prof. Kingshuk K. Sinha, PhD (Carlson School of Management, University of Minnesota
* Prof. Barbara J. Evans, PhD, JD, LLM (Law Center, University of Houston)

Moderated by Susan M. Wolf, JD (School of Law and Consortium on Law and Values, University of Minnesota)

The Internet and Big Data are transforming science. Fitness trackers and wearables are streamlining the gathering of health data, while the Precision Medicine Initiative seeks to harness these data together with genomics to create personalized medicine. Meanwhile, patient groups want an active role in the development of therapies and drugs. In this final event of the Deinard Lecture Series, four panelists discussed these dynamics and the questions they raise about medical research, privacy, data ownership, and ethics. A robust question-and-answer period followed.

This event is the last in the Deinard Memorial Lecture Series on Law & Medicine. Support comes from the Deinard family and the law firm of Stinson Leonard Street.

Co-sponsored by the University of Minnesota's Consortium on Law and Values in Health, Environment & the Life Sciences; Center for Bioethics; and Joint Degree Program in Law, Science & Technology.

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