Loading...

Trisomy 18 - Rebekah Standing

46,881 views

Loading...

Loading...

Transcript

The interactive transcript could not be loaded.

Loading...

Loading...

Rating is available when the video has been rented.
This feature is not available right now. Please try again later.
Uploaded on Oct 20, 2010

9/29/10 - Rebekah has full trisomy 18 considered 'incompatible with life' by the medical community. We were told we would probably never bring her home from the hospital. And if we did, we would regret any life-saving surgeries that would do nothing more than prolong her 'meaningless' life.

Despite her extra chromosome, developmental delays, and physical challenges (like poor muscle tone in her back/neck, rocker bottom feet, webbed toes, valgus feet (opposite of club foot), double joints everywhere that increase risk of joint injuries, tracheostomy for obstruction and low muscle tone...), we work daily with her on occupational, physical, and speech therapies. We recently added cranial sacral therapy to her list too, and it has made a world of difference for her! She is now initiating weight bearing where she used to pull her legs completely into a fetal position unless we braced them. It is amazing how much she has progressed physically in just the last month or two.

In this video, her nurse is holding her on her leg. Rebekah tends to shake her head at times, but if you hold her head still, she redirects that 'need to move something' to another body part and we were surprised to see her initiating a full standing position! She doesn't have the coordination or balance to do this on her on, but this is still an amazing accomplishment for her and we look forward to many more!

Just remember, Trisomy 18 is a diagnosis, NOT a prognosis!

Loading...

Advertisement
When autoplay is enabled, a suggested video will automatically play next.

Up next


to add this to Watch Later

Add to

Loading playlists...