 Okay. That's it for presentations. Next up is council initiated discussion. You know it. You love it. You've done it before. You know this is where we sort of turn the microphones over to you. And we ask you for suggestions or recommendations of reports that you might want to hear either from the staff or invited speakers. Problems that you're hearing about in the community that you think should be brought to NHGRI's attention or basically whatever's on your mind. Now I've sat through enough of these to know that very often you're throwing questions at Eric and he's obviously engaged and integrated at a very high level at NIH. I'm not privy to a lot of those conversations and meetings. So I may call on some of the division directors if I think they know something about your particular question. So we'll do the best we can without Eric. I have to start assigning homework assignments to you guys. Wendy. It just seems that today's presentations have been great in terms of seeing some of the plans for being able to put data in the data commons or in the LC commons things like that. I'm just wondering what the plans are then for being able to support the research to do that those analyses. In other words it's going to be a real opportunity I think but that needs to be partnered with being able to have resources to do the analyses and that's sometimes underfunded. Very valid point. What are you asking NHGRI to do? Brainstorm on that and come back to you with a report. Yeah just yeah you know what are the plans and are there opportunities then to sort of tie in with this to make sure those opportunities aren't lost and that we don't lose any time. Okay. I guess another area that I'm naturally thinking about is just you know how do you because I actually think the presentations were super and I really like to listen to the overview of the presentation gives you a much better perspective on what we're doing on the grants. But you know long term where are some of these programs going right? How are they actually integrated into society at large? Do they you know are we do we think that many of them will be picked up and be self-sustaining through the economy and through you know the medical community or do we anticipate a number of them that will be going on for the next 30 years and and the only reason I say that is is just you know it's a lot of times we talk about the priorities and there's a lot of promise on all these things. The question is can they actually be incorporated and I'm not sure what I'm asking yet other than as a theme I'd be very interested to hear more about what what people are thinking. So again just so you know every time it's every time an RFA comes up for renewal it does come back to the council and we have a discussion with you and you vote on a concept to renew it. You have I don't want to say a control over it but at least the question is posed. Yeah I know I mean you guys have thought a lot about this for a lot of years and it'd be really interesting you know for the field in general to get a good perspective on this just because it puts everybody on common footing so you know with every new council member you don't have to sort of rediscuss this it just be useful. Yeah so with the strategic planning coming up and the timing with the I know the all of us program has this RFA out for genome centers maybe in September council it might be useful to get an update from them because I think the timing of the two initiatives is important. Yeah from the all of us program and what their plans are for the genome sequencing. Yeah along those lines I would like to hear more about what the plans are for the genome sequencing centers and I guess that's coming up maybe in September or. There'll be a discussion close session about that we'll see if that satisfies. Will there be like kind of regular formal update I mean you were asking about all of us getting an update will there also be regular updates to council on the strategic planning process or other than what's in Eric's presentation will there be like a dedicated discussion or something. So that same question was posed at the February council meeting and I think the answer to it is as needed and when relevant there hasn't been that much that's happened in the last three months so you're not getting a specific report but we are gonna pretty quickly now get into the period of frequent workshops and so you're gonna see the pace pick up. So would I mean would September be a good time for like a summary or too early still. I don't have the timeline in my mind. There's an update. I see Carolyn getting up to rescue me so. Internally about so we have I think for people who heard Eric's presentation in February this is open session or people who watched the strategic planning town hall that's also available online we have internally a set of focus groups five focus groups and we're moving along we're gonna have our first two town halls in addition to the virtual town hall and we've discussed sort of internally discussing in August a state of where we are after those initial town halls and other activities so I think September would actually be a very good time for us to come and give you you all an update as well. Yeah here's a request from left field but I've been kind of late to the whole notion of biohacking and this seems to me to be a significant threat really a threat in a couple ways threat to public health for the creation of organisms in entirely unregulated environments and really a potential threat to serious genetic research and science if people do get hurt and there's notions about how this technology becomes a threat rather than an opportunity you know maybe this will turn out to be complete quackery and a fad but I'm thinking that the power of these technologies in the relative ease and inexpensive nature of them really do pose a threat to society that you know I wonder where the genome institute has a role in taking seriously where society ought to be going with thinking about this sort of misuse of these technical tools so you know if others are interested would there be an opportunity to hear what the regulatory gaps are in our system at this point that folks are taking advantage of to explore you know genome technologies in their basements and bedrooms so I would be interested in getting some updates on how the new t 32s in genomic medicine so we have t 32s now in genomic science and genomic medicine and sort of hearing back on how those are going I think would be really useful because those especially the one in genomic medicine was a relatively new concept and just getting an overview I think would be really helpful so I don't know can somebody tell us when the first genomic medicine t 32 was awarded I don't think it's been it's been two years okay you may have to or I can just repeat for you sure so you're saying there's seven oh okay yeah so there's seven applications at seven programs and then okay so maybe some kind of report with summary statistics or success with recruitment it's an incredibly unique program and I just I think just hearing about what the successes and what the challenges and successes and solutions yeah okay all right I also think to Jeff's point the whole you know this to me this issue about biohacking it goes to to literacy of the public in genomic science and you know genomes and society and I know there's a lot of activity and HGI around that so maybe addressing that specifically maybe is too narrow but the broader the broader area of how to raise literacy in general without engineering bugs that will take over the world is I think it's an important topic and are there research opportunities there I mean we're not a law enforcement or regulatory agency we sponsor research so is it is there a need to study further yeah great question I don't I don't claim to know enough about it I think it's so rapidly moving but I've just seen I've just seen seen things emerge in the popular press really just in a relatively short period of time about this and I'm learning that there's all conventions of people who were engaged in these activities and so a landscape sort of research project might well be worthwhile to sort of see who's out there who's doing what what's the nature of the claims being made etc yeah I don't know exactly what the request is but I work with a lot of physicians that are very good clinical evaluation of patients and when we hear things like the undiagnosed disease program the intramural program the clinical center here I think it's fantastic but I also think it's biased that we're hearing the one side of it and and so what I'm I'm not sure who you would invite to talk about this but I'm wondering if having other Institute directors come that might have different perspectives either ones that work closely with NHGRI or ones that have sort of shied away to see what their perspectives are so when you say biased you mean too much emphasis on the molecular genetic lesion not enough on the phenotyping diagnostic yes as if the the genetic testing was the whole answer it wasn't and there's cases out there that are advertised as such very prominently when in reality the clinical the geneticists looked at the patient knew what they had and we don't hear about that we hear about oh they did a whole exome or and found the disease causing very from my perspective this is a long enough action item list between now and September Council so I think I'll call this to a close okay so to finish up just a few more administrative things we have two reports from our liaison societies the National Society of Genetic Counselors quarterly update in the American Society of Human Genetics Report to Council these are events that have been sponsored by these societies and if you're interested in those the activities of the societies I recommend these reports to you I'm now going to read the conflict of interest charge and this applies to all of the applications that will be reviewed in the closed session so you must leave the meeting room when applications submitted by your own organization are being discussed individually discussed in the case of state higher education or other systems with multiple campuses that are geographically separated own organization is intended to mean the entire system except where a determination has been made that the components are separate organizations for the purpose of determining conflict of interest you should avoid situations that give rise to charges of conflict of interest whether real or apparent for example you should not participate in the deliberations and actions on any application from or involving your spouse child a recent student recent teacher professional collaborator with whom you've worked closely close personal friend or a scientist whom you've had longstanding scientific or personal differences NHGRI staff will determine the appropriate action based on recency frequency and strength of such associations or interest either positive or negative and will instruct you accordingly in council actions in which you vote on a block of applications without discussing any individual one the so-called on block action your vote will not apply to any application from any institution fulfilling the criteria noted above now in your folders there should be an actual hard copy document please sign that and they'll be collected at the break between the open and the closed session so the last order of business is I want to take a moment to acknowledge our program analysts at NHGRI as the council's where well well aware there are several very large consortium like activities research activities that NHGRI sponsor and it's an awful lot of work to manage those consortia generally weekly phone calls lots of reports lots of tracking of production activities lots of action item lists and follow-ups that come from that and I don't think that our program directors want to contemplate a life or at least a working situation without the support of their program analysts now these analysts come to us for a two-year tour of duty there are all college graduates that want a different experience or some time off before going off to their next educational experience so it's time to graduate a class of them and I want to acknowledge them as a group I will tell you that they're off to MD PhD programs to graduate school to medical school to genetic counseling programs and even an opportunity in the intramural research program so they've worked very hard for two years they're a very dedicated bunch and they're accomplished by virtue of where they're going next in life so when I call your name would you please stand Aaron Curry Sarah Gould I'll let's save it for the end please Sarah Gould Ellen Howerton Jeff Kim no stay up you guys stay up Aaron get up melky Kasabi Sam Moore Laura scow and Margaret Genoza who left us last week so congratulations class of 2018 and for the council in September I'll be introducing you to the new class of recruits that come in generally over the summertime okay let's take 15 minutes to break this oh that's the official end of the open session we're gonna take a 15 minute break to take down the cameras we'll come back to review a few applications in closed session thank