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Uploaded on 23 Oct 2007
My 8yr old son, has a rare disease called Chiari Malformation.
Chairi Malformation is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms such as, painfull headaches in the back of the head, that increases in pain with straining or coughing, ringing in ears, painfull tingly sensations, and many other symptoms.
This video was originally made just for my son and our family during his stay at the hosptial for his decompression surgery. But i'm hoping that by uploading it, that I can help with awarness about this condition, that can be so misunderstood by many Dr's and patients, many people are still being misdiagnosed every year.
Please take the time to visit www.conquerchiari.org and educate yourself about Chairi/Syringomyelia even if you are not effected with it or not..
Knowledge is power :)
Thank you all This video is best viewed at small size.
Update: Thank you all so much to all of you who have written to us.. Since the surgery, Alex still has some symptoms he deals with but not on such an extreme basis, and he is a happy, healthy young man. Who loves baseball lol... Recently, due to a copyright claim, I had to remove the original song that I had made this video with and do an audio swap.. I'm hopeing it will be back soon. Please check out this amazing song and artist. He's my son by Mark Shultz, true amazing singer.