Join Sean and Shari Hathaway as they share their cystic fibrosis journey with their son Ross. You can become a part of this awareness journey as well by visiting any of Mattress World Northwest 11 locations across Portland by helping make C.F. stand for Cure Found!
We have two kids, our daughter Amanda is a junior at Oregon State and Ross is a seventh-grader he's 12. So Ross had coughing, constant coughing. We were trying to track what made him cough, we started out having him go to an allergist, we did naturopath and
was seen by a pediatric pulmonologist for six months and was treated with asthma and it was just finally by a fluke that he was going into the ER with his abdominal pain, they actually admitted him they thought he had appendicitis and then they did a cat scan and saw something suspicious and then they called us a couple days later and said that they wanted him to go in and have the test done for cystic fibrosis and that wasn't a very fun experience.
When they call and tell you that you're being tested for CF and your uncle you never met died at sixteen of it you gotta explain and open up that wound for your whole family. You gotta call your grandparents who lost their son and your mom who lost her brother and everybody knows the whole drama of that and on top of that we already have a prelude of what that could possibly mean to us
since we don't know anything about.
And the whole family struggled with sadness and when the doctor said that there's a few treatment you have to do every day and here's what you have to do to keep your son healthy then I'm on that train and I'm not looking back.
For Sean it was well now we know what to do which was very nice to have that strength and for me it was a lot more emotional.
For a year we struggled in silence maybe even two years you don't call your friends you don't want to explain the story and all the details and woe is me and our son has this issue so you basically stay at home. And then you realize you just gotta start telling people that you just cannot stay cooped up in I'm not sure of this you just gotta bite the bullet.
We heard about the Cystic Fibrosis Foundation how we could join, meet other people and do something.
A lot of my energy outside of just being a mom is thinking about different ways we can raise money and how I can try to make a difference and I'm hoping that it's Ross that can make a difference.
My mom is my hero, she raises money for CF. CF is a disease that I have. She wants to do everything she can
to find a cure. My sister, my dad and my friends help find a cure too. I know I'll get a cure sometime with my family by my side.
The hope is in helping all the young kids get to a real old age and at Mattress World Northwest we have such a
great crew, you kinda explain that situation again to them and they're ready to get on board and help raise money and go to the walks.
So the great strides walk is the the Foundation's largest fundraising activity that they have. Our team is called "The Force".
We call it "The Force" because we love Star Wars, we all walk and it raises money for a cure and it's really fun. It was emotional and it was very rewarding to have all these people that wanted to help.
We all get stuck on dreaming too big and the obstacles are too huge and then we end up not doing anything.
So, if you want to come join our walk or any of the dozens of walks in Portland or send $5 to any cause you see on the radio or TV
do it and you just got started, and next year you double it and you're on your way
I jus want him to have a healthy happy life, a long healthy, happy life!