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~~Jackie's Journey~~ 2011.wmv

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Published on Aug 31, 2011

This is a video about my daughter and the challenges of life with Dravet Syndrome. I hope that this will help raise awareness about this catastrophic condition. Early genetic screenings for Dravet Syndrome are critical for any infant presenting uncontrollable seizures to avoid potential life threatening medical mistakes. It took Jackie over 7 years to receive a proper diagnosis. This is an incredible journey.

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