VF Extraordinary Vasculitis Stories: One Family---Three Cases of PAN





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Published on Jan 16, 2014

In this video you will find out why Jill's story is so extraordinary that it has raised interest among her doctors.

Her grandmother was diagnosed with Polyarteritis Nodosa (PAN) over a decade ago.

Four years ago her son Jake began complaining of severe abdominal pain, and he suffered a small brain stem stroke. Further testing and ultimately a biopsy revealed that Jake had Polyarteritis Nodosa.

Then, in August 2013, her daughter Alexa complained of severe abdominal pains and headaches.
Jill asked her daughter if she had any bumps and Alexa replied she did--showing several nodules on her hands. At that point her son Jake said those bumps were similar to the ones on his body too.

It wasn't long before Alexa shared the same diagnosis as her brother.

As if that isn't enough, Jill herself has begun exhibiting early symptoms that have raised concerns because of the family's connection to vasculitis.

Although their doctor has only found two documented cases of siblings having the same vasculitic disease, Jill says they haven't yet found a case where it affected three people within one family.

Extraordinary Vasculitis Stories produced by Ed and Mary Becker for the Vasculitis Foundation.


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