Swallow study for baby with posterior tongue tie





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Published on Oct 26, 2011

This is Baby Z's barium swallow study that was done when she was about 4 months old. She has posterior tongue tie and had a suspected VPI; it's highly doubtful she has one, but it was suspected at the time.

I thought it might help other parents and professionals see what a baby with posterior tongue tie looks like on a study.

She's feeding from a Haberman - Medela special needs feeder - which is the only bottle she's capable of drinking from. At the time this was taken she could not create suction on her own due to her tongue restriction.
With OT and suck training she's learned to use her tongue much better and has now made really great improvements.

I wrote about all her breastfeeding difficulties and the journey to get this far on my blog, which can be read here: http://babyslime.livejournal.com/6478...

I have been asked more than a dozen times now, so I hereby give permission for this video to be used for educational purposes wherever it may help. All I ask in return is to please provide a link back to the original video and blog entry when possible; in hope that it may help other parents understand what is entailed, and what we personally went through to ensure a success story. Aside - or including - from that, please share far and wide!!
When we were dealing with this, our PT had never even heard of "posterior tongue tie", so my hope is for others to never have to hear that. Good luck to you! Whatever you manage, is your unique success.

#1: After a very, very long and difficult journey we were able to return baby Z back to the breast 100% by 8 months with daily PT/OT. She outgrew the need for PT/OT when she was able to return 100% at the breast, and at t hat point we were able to begin to introduce home-processed solid foods into her life; around 9-10 months. We continued to see improvement without too many obstacles!

*June/2015 (4 years old)*:
Z still drools heavily and has some speech impediments that require work; though she is doing far, far beyond what was expected, and this is very much thanks to "extended' breastfeeding and our amazing support circle that never stopped believing.

*Dec/2016 (5.5 years old)*:
Happy to report that Z is in Kindergarten and her speech has caught up to her peers. She always had the same vocabulary, but tended to be less intelligible and so was often frustrated when people couldn't understand her (we compared it to someone talking with a mouthful of potatoes). She's just about average for her age now, and at this point it was determined that she did not need additional speech or occupational therapy.
Her drooling (which had begun virtually at birth) began to disappear at age 5 and now we see it only occasionally; like if she's mad and pulling faces.
She has not experienced any dental issues relating to the tie.

Information on posterior tongue tie can be read about here:
Dr. Lawrence A. Kotlow, D.D.S., P.C. - http://kiddsteeth.com/articles.html

A Haberman/Medela Special Needs feeder looks like this :

Extra Tags:
posterior tongue tie, tongue tie, tongue, posterior, anterior tongue tie, ankyloglossia, babyslime, babs, restriction, velopharyngeal insufficiency, velopharyngeal, cleft, palate, cleft nose, breastfeeding, nursing, breast, feeding, bottle, medela, haberman, habermann, feeder, calma, breastfeeding difficulty, breastfeeding problems, clicking while nursing, ENT, ear nose throat doctor, barium swallow, barium, posterior tongue tie, PTT, Tongue tie type 3, tongue tie type 4


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