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  • What is XP? AnnaLiberty.com - xeroderma pigmentosum

    6,344 views 2 years ago
    Learn about Anna Liberty's rare disease in this short, interesting video.

    Her website is http://www.AnnaLiberty.com

    Anna Liberty is an adorable little girl who cannot go out into the sunshine. She was born with Xeroderma Pigmentosum (or XP), a genetic disease that causes her to be extremely sensitive to the damaging effects of ultraviolet radiation. Here DNA can't repair itself. About 1 person for every million in the US have XP. Basically, Anna can't be exposed to direct sunlight. Ever.

    Daily living is a bit different for Anna. Each day, Anna's skin is covered with sunblock and lotions. She must remain indoors to be completely safe. Before going outdoors, Anna must wear, long pants, long sleeved shirts, gloves, sunglasses, and a custom made hat with a specialty UV-blocking plastic face shield.You'll understand better after reading these answers to the common questions.

    Because Anna was diagnosed early, if she continues to not show neurological symptoms, and takes all the precautionary measures to avoid exposure to UV light, she will defy the odds and live a long, happy life.

    Sunburn XP Xeroderma Pigmentosum Vampire Rare Disease Genetic Inherited Sunblock UV Melt Sunlight Sun AnnaLiberty Anna Liberty Show less
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