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RemedyMD Rare Disease Contest
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RemedyMD Rare Disease Contest

  • These two are not left and right. They are middle of the road for watered down non-action and indecision. Zappa did good, but he missed the boat when they brought up Hitler and 'the big lie". Hitler's first way of disseminating such lies, was by owning the media. In other words, censoring everything that didn't fit his views, which is what these corporate owned networks are all doing and what fatty is endorsing. Yes you can't keep your kids from seeing everything, but you can teach them to think

    Frank Zappa on Crossfire - Duration: 21:18.

    • 8 years ago
    • 2,351,917 views
    Zappa on CNN's Crossfire in 1986. Discussing copyright. Zappa's the man!
  • CORRECTION: The winner will be announced today via free webinar beginning at 2 PM Eastern (Noon Mountain). https://www1.gotomeeting.com/register/234937185

  • Today at Noon Eastern U.S., listen in live to hear the winner of the rare disease registry giveaway from RemedyMD and the CRDN. It's free and educational, too! Register at https://www1.gotomeeting.com/register/234937185

  • wannabe blairwitchwith worseacting

    Real Ghost caught on video (The Haunting Tape 02) - Duration: 2:28.

    • 4 years ago
    • 48,129,508 views
    The video documents new paranormal activity that has started at my residence. In the video I heard the ghostly footage steps during recording and saw the door slam. However it was not until I playe...
  • The judges are deliberating and we will have a winner decided before the Oct. 12th free webinar from RemedyMD. Stay tuned! The winner will be announced live so sign up at https://www1.gotomeeting.com/register/234937185 and learn how this software can help rare disease researchers!

  • Thanks to everyone who entered this contest from RemedyMD and Project RARE! The deadline for submitting videos has ended, and between now and our live webinar on Oct. 12th, the judges will determine the winning video. This free 1 hour online seminar will demonstrate what a RemedyMD registry can do, and we will announce the winner live at the end. To listen in and watch on Oct. 12, go to http://remedymd.com/RemedyMD-Live-Webinars.php.

  • Eosinophil Associated Diseases, Registry Video - Duration: 3:22.

    • 3 years ago
    • 2,360 views
    Please "like" this video to help support those living with Eosinophil Associated Diseases receive a Rare Disease Registry. This Registry would assist physicians and researchers in developing bette...
  • Hi! Two more entries received today! Contest ends tomorrow at midnight! Thanks to all participants from RemedyMD and the CRDN and Project RARE!

  • Miracles can happen - Duration: 7:47.

    • 3 years ago
    • 4,469 views
    Like this video to help us secure us secure a patient registry worth $50,000 to help children across the globe living with congenital myasthenic syndrome. By creating an international patient regis...
  • Rare Disease Video entries due by end of Friday!

    Thanks to Pachyonychia Congenita and their video entry. Everyone still has a chance to win, and this is a rare $50,000 opportunity to help your rare disease of choice! Details at http://www.youtube.com/user/RareDiseaseContest

  • Pachyonychia Congenita Rare Disease Video Contest 2011 - Duration: 1:16.

    • 3 years ago
    • 3,319 views
    Please LIKE this video on YouTube (click the LIKE hand.) PC Project needs your help to win. The software will be an important tool as we move forward in research and clinical trials for Pachyonychi...
  • 10 Days Left to Win $50K in Rare Disease Research Software!

    All it takes is a simple video a few minutes in length. Just 4 entries to date!

    Details: http://www.remedymd.com/RareDiseaseContest.php

  • this isn't just about bank bonuses. it's about having to pay interest to the Reserve to borrow money they create out of thin air. The bank scapegoat in this piece is a ploy to facilitate more bank take-overs. The real story is the Reserve, the invasions in the middle east, the Rothschilds, the Illuminati agenda...pass a bill banning a private central reserve with non-elected members, and reverting back to the popular vote 100% of the time, with paper secure ballots.

    Occupy Wall Street Protests - Duration: 2:57.

    • 3 years ago
    • 510,126 views
    OCCUPY EVERYWHERE!!!
    * http://www.youtube.com/watch?v=-ia2ej0l-b4
    OCCUPY WALL STREET MANIFESTO: End Casino Capitalism!
    * http://www.youtube.com/watch?v=MXZQBwphdFQ
    Occupy Wall Street Manifest...
  • The contest to win a rare disease research software package from RemedyMD and the CRDN valued up to $50,000 ends on Sept. 30th. Now is the time to make videos, submit them, and email or call your respective disease research organizations to make sure they know about RemedyMD and the contest, and encourage all their staff to come and vote for videos or even create ones for entry! These videos can be as short as a few minutes in length! http://www.remedymd.com/RareDiseaseContest

  • Prader Willi Syndrome 2011 Rare Disease Contest - Duration: 6:39.

    • 3 years ago
    • 12,040 views
    http://www.fpwr.org - Find out about how the Foundation for Prader-Willi Research is working towards eliminating the challenges of Prader Willi Syndrome
  • NephCure - Nephrotic Syndrome and FSGS - Duration: 1:25.

    • 3 years ago
    • 3,109 views
    "Like" this video here at YouTube and help NephCure win this important contest that will enable us to better assist researchers who are seeking to find the cause, cure and effective treatments for ...
  • What is Intracranial Hypertension? - Duration: 7:50.

    • 3 years ago
    • 8,254 views
    Please Visit the Intracranial Hypertension Research Foundation at:
    www.IHRFoundation.org

    Music used:
    "Eternal Hope" Kevin MacLeod (incompetech.com) Licensed under Creative Commons "Attribution 3.0...
  • Marshall-Smith Syndrome.flv - Duration: 3:37.

    • 3 years ago
    • 1,767 views
    Video of 9 patients suffering from the ultra rare Marshall-Smith Syndrome (MSS). Marshallsmith.org is a patients association for patients with MSS.
    Worldwide there are 30 patients known with MSS, 9...
  • Thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit Remedymd.com/RareDiseaseContest. Good luck!

    A rare disease, a loving father - Duration: 3:21.

    • 6 years ago
    • 32,037 views
    Lucie and her brother Conor have Batten Disease, a neurological disorder that, as protein deposits build up on the brain, causes blindness, uncontrollable seizures and a reversal of the mental stat...
  • thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit Remedymd.com/RareDiseaseContest. Good luck

    Rare disease - causing patients to turn to stone - Duration: 6:31.

    • 6 years ago
    • 145,955 views
    http://fopworld.blogspot.com/ Its the story of patients who have disease causing their soft tissue - muscle, ligaments, tendons - to turn to literal stone. It's like their skeleton is forming a ske...
  • Thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit Remedymd.com/RareDiseaseContest. Good luck!

    Epidermolysis Bullosa clinic visit - Duration: 2:47.

    • 5 years ago
    • 10,092 views
    Epidermolysis Bullosa, or EB, is a rare genetic skin disorder the the majority of people have never heard of, yet it affects 100,000 children across the United States. Children born with this disea...
  • Thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit Remedymd.com/RareDiseaseContest. Good luck!

    Ehlers Danlos Syndrome - Dying to Live - Duration: 3:38.

    • 4 years ago
    • 10,931 views
    Join the international community on EDS to meet others who understand:
    https://www.rareconnect.org/en/community/ehlers-danlos-sy...

    I made this video to represent our families battle with Ehler...
  • thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit Remedymd.com/RareDiseaseContest. Good luck

    PATRICIA USES MYSPACE TO RAISE AWARENESS FOR RARE DISEASE - Duration: 2:10.

    • 6 years ago
    • 5,067 views
    http://www.myspace.com/patriciamastoandeds
    BBNB PROUDLY SUPPORTS PATRICIA & HER SONG DUSTIN IN RAISING AWARENESS FOR THESE RARE CONDITIONS.
    Patricia, who has been nearly bed-ridden for three yea...
  • Thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit Remedymd.com/RareDiseaseContest. Good luck!

    I have Pseudotumor Cerebri - Duration: 1:30.

    • 3 years ago
    • 1,788 views
    My entry for the Rare Disease Day Video Contest. If you are interested in enering yourself the guidelines are as follows:
    This year we want to hear from as many individuals as possible in their own...
  • Thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit Remedymd.com/RareDiseaseContest. Good luck!

    Garrett: The Boy Beneath The Bandages. WINNER of the Rare Disease Day 2010 Video Contest. - Duration: 5:03.

    • 5 years ago
    • 55,557 views
    Epidermolysis Bullosa, or EB, is a rare genetic skin disorder the the majority of people have never heard of, yet it affects 100,000 children across the United States. Children born with this disea...
  • Thanks for the video. We too are trying to aid researchers in their discovery of cures for these children, and we are doing this by supplying them with the research software they need. Together with the CRDN we are giving away a rare disease research system worth $50,000 to the winner of a video submission contest and the rare disease organization of their choice. To learn more about this contest visit RemedyMD's website and click on the banner at the lower right

    . Good luck!

    PKU and us - WINNER of the Rare Disease Day 2009 VIDEO CONTEST! - Duration: 7:22.

    • 6 years ago
    • 18,097 views
    A toddler must have a protein restricted diet due to the rare metabolic condition PKU. With this condition, protein becomes neurotoxic to the person. Without this extreme diet, the brain suffers ...
  • RareDiseaseContest The contest begins June 26th, on the anniversary of the mapping of the human genome. For details, visit http://www.remedymd.com/RareDiseaseContest.php. To learn more about RemedyMD research registries attend the free webinar Wed., June 22nd at 2 PM (EDT) titled "Using Registries to Accelerate Rare Disease Research". Register at https://www1.gotomeeting.com/register/905474040.

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