You are beautiful. And I love your side-kick. My girlfriend is 40 and has LGMD. She can't get up or walk anymore, but we have a wonderful life. She has a 14-year-old son.
What you say is true of younger people as well. The stress of being examined by the physician is enough to make a patient forget to mention a symptom or forget some of the doctor's instructions. I think it's good for anyone to have a companion at a doctor's visit. And even better if the patient's needs are complex as with a chronic condition.