EmesArmy supports Emerie, a 7yr old little girl that is going blind from LCA, Lebers Congential Amaurosis. Eme's (eM-E) blindness is caus...
EmesArmy supports Emerie, a 7yr old little girl that is going blind from LCA, Lebers Congential Amaurosis. Eme's (eM-E) blindness is caused by a very rare genetic mutation in her CRB1 genes on chromosome 1 that only affect @300 people in the US. LCA-CRB1 is a very aggressive form of RP, Retinitis Pigmentosa, and will likely leave Eme completely blind by her early teen years. Currently, there is no approved treatment. Eme & her family & her army of supporters that have grown into EmesARMY are advocating for faster rare disease research and treatments. Eme & EmesARMY are leading the charge by inspiring people to fund a clinical trial gene therapy treatment that can STOP Eme's blinding disease. Grassroots fundraising (from kids birthday party donations to bake sales to people across the nation organizing local events) is the only way Eme will get her treatment developed. People are getting behind Eme & EmesArmy.org & helping #cureEme & #cureLCA It's amazing. MISSION | VISION