yt:channel:qBZwulTA-5rkXiHHKjWKSA qBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2023-05-30T20:51:37+00:00 yt:video:rRxq4VzI9EI rRxq4VzI9EI UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2025-10-02T20:43:23+00:00 2025-10-02T20:52:21+00:00 09/23/25 - Our special guest this month was an interview with Dr Ray Dorsey. This month we were joined by Dr Ray Dorsey. Dr. Ray Dorsey is a neurologist, researcher, and public health advocate working to end Parkinson's disease by addressing its root causes: toxic environmental exposures. He is the co-author of The Parkinson's Plan (2025) and Ending Parkinson's Disease (2020), and serves as a Professor of Neurology at the University of Rochester. One of the world’s most widely read, cited, and followed neurologists, Dr. Dorsey has spent his career exposing the environmental drivers of neurological disease - and advancing a vision for a future where conditions like Parkinson’s are rare, not inevitable. The White House recognized him as a “Champion for Change” for his groundbreaking work on Parkinson’s disease. He has testified before Congress, advised the World Health Organization, and leads pioneering research at the intersection of environment and neurodegeneration. His work highlights the growing evidence behind the Parkinson's pandemic, linking the disease to chemicals commonly found in our environment from dry cleaning facilities to golf courses. Dr. Dorsey is also the founding director of the Center for the Brain & Environment at Atria Health and Research Institute, where he is working to uncover and eliminate the environmental contributors to Parkinson's, ALS, Alzheimer's, autism, cancer and other chronic diseases. He co-authored the best selling book "Ending Parkinson's Disease" in 2020 and he co-authored the new book, "The Parkinson's Plan - A New Path to Prevention and Treatment. The Parkinson's Plan book has earned over 65 endorsements across advocacy, medicine, research, environmental health, public policy, and beyond. yt:video:-_4cN0XWJXo -_4cN0XWJXo UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2025-08-07T04:00:01+00:00 2025-09-06T13:59:58+00:00 04/10/2025 - Presentation on improving our relationships by Freya Robbins. This month we had as our guest speaker, Freya Robbins. A compassionate and resilient professional with a counselor’s heart, I have turned personal adversity into a source of strength, helping families navigate difficult transitions. As a Florida Supreme Court Certified Family Mediator, Certified Divorce Financial Analyst (CDFA), and business owner, I have guided over 1,000 couples through amicable resolutions, saving them time, stress, and financial strain. yt:video:S8YhtKJ0js0 S8YhtKJ0js0 UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2025-02-18T00:38:27+00:00 2025-06-12T02:09:47+00:00 February 2025 Support Group Picture Challenge of Flowers Here are the pictures submitted by several of our support group members for the picture challenge in February 2025 with the subject of Flowers. yt:video:r2FOy62t4MU r2FOy62t4MU UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2025-02-17T20:49:51+00:00 2025-06-13T09:12:45+00:00 01/28/2025 - Presentation on Focused Ultrasound for PD with Dr Tim Meakem This month we had as our guest speaker, Tim Meakem from the Focused Ultrasound Foundation. Tim has an extensive background on behalf of advancing this non-invasive option for patients. With his physician experience, medical device industry background and knowledge of the clinical research process, he is able to speak authoritatively on this topic. Focused ultrasound uses ultrasonic energy guided by real-time imaging to treat tissue deep in the body without incisions or radiation. Multiple intersecting beams of ultrasound are directed and concentrated on a target; much like a magnifying glass can focus multiple beams of light on a single point. Where each individual beam passes through the tissue, there is no effect. But, at the focal point, the convergence of the beams of focused ultrasound energy results in many important biological effects depending on the nature of the tissue and the ultrasound parameters. yt:video:V08sOm9_kAQ V08sOm9_kAQ UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2024-09-25T21:49:26+00:00 2025-06-12T12:01:03+00:00 09/10/24 - Presentation on DBS with Dr Atilio Palma 09/10/24 - This month we had Dr Atilio Palma was our guest speaker. Dr. Palma is a neurosurgeon in Naples, Florida and is affiliated with the Physicians Regional-Pine Ridge Hospital. He received his medical degree from Loma Linda University School of Medicine. Dr. Palma has expertise in treating neck pain and spine problems, spinal fusion, among other conditions and he does DBS surgical procedures for patients with Parkinson's disease and for essential tremor. yt:video:dmlh4OvmoQw dmlh4OvmoQw UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2024-08-30T22:23:22+00:00 2025-06-06T12:19:12+00:00 08/27/24 - Interview with Dave Iverson Dave Iverson was a broadcast journalist who’d recently been diagnosed with Parkinson’s when he decided to do something he’d never quite imagined: He moved in to take care of his 95-year-old mom. Winter Stars is the story of their decade-long caregiving odyssey, which lasted until Adelaide Iverson’s death at the age of 105. It’s a book Michael J. Fox calls “a modern classic … documenting the uncertain journey into the country of caregiving and the deeply sustaining bonds of familial love.” yt:video:JdiZ__qY3ME JdiZ__qY3ME UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2024-08-30T21:16:48+00:00 2025-06-06T19:21:39+00:00 07/30/24 - Presentation and Q&A with Dr Micheal Kaplitt This month we had Dr. Micheal Kaplitt as our guest speaker. He specializes in neurosurgical treatment of movement disorders, including Parkinson's disease, essential tremor and dystonia, using various surgical approaches including deep brain stimulation. Dr. Kaplitt has pioneered the use of gene therapy in the brain. He has published over 40 papers and has edited two books on this subject. He recently completed the first clinical trial of gene therapy for Parkinson's Disease for FDA approval, and his laboratory is actively researching mechanisms of cell death in diseases such as Parkinson's and Huntington's. yt:video:qLXI1P48C8A qLXI1P48C8A UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2024-07-29T21:08:24+00:00 2025-06-07T00:24:22+00:00 06/25/24 - Presentation by Jud Eason his month's guest was our own Jud Eason. Jud is one of our original support group members and he leads the Capital District Parkinson's Support Group. In this video shares his personal story of how juggling has positively impacted his PD and his life. yt:video:I0aPBkBYKq0 I0aPBkBYKq0 UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2024-06-19T21:25:40+00:00 2025-06-12T05:26:35+00:00 05/28/24 - Judith Sachs Presentation on Close Couples and Q and A JUDITH SACHS is the Founder and Director of ANYONE CAN DANCE®, an adaptive movement program in Philadelphia, PA. Although she started her professional life on the stage, and then moved to the healthcare arena, she now combines these two passions. Since we were designed to move throughout our lifetime, her goal is to get everyone comfortable in their body. As the daughter and granddaughter of physicians, Judith understands that there are different types of medicine—and healing can happen as we become more aware of our own potential to move, at whatever age or stage of life. Judith is a certified Dance for PD® teacher in Philadelphia and a 2020 and 2021 Parkinsons Foundation COE Grantee for her innovative therapy program, CLOSE CONTACT for COUPLES® with PD. yt:video:7XGmy_nF08I 7XGmy_nF08I UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2024-05-16T21:52:42+00:00 2025-06-09T15:49:12+00:00 04/30/24 - Dr Heather Herrama Presentation on Exercise and Q and A This month we had the privilege of having as our monthly guest Dr Heather Herrema. Dr Herrema is a Movement Disorder specialist with the Central Neurology group in St Petersburg, Florida. Her excellent presentation on exercise highlights the benefits of exercise for people with Parkinson's Disease. She talks too about the challenges on doing regular exercise and how to overcome these along some great exercise tips. At the end of her presentation we opened it up for Q & A with our support group members. yt:video:4HaWGeW5oLg 4HaWGeW5oLg UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2024-04-08T00:01:49+00:00 2025-06-05T19:18:52+00:00 03 /19/24 - Presentation and Q&A with Jill Grinnell This month we had the privelege of having Jill Grinnell from Golden Girls as our guest speaker. Starting the process of finding a safe and individually fitting senior living community based on care needs, finances, environment, location, and preferences can feel overwhelming - don’t do it alone! Jill Grinnell has over 30 years of experience working with seniors and their families. She started her career after graduating from Mt. Mary University with a degree in Business Communications and Marketing with an emphasis in Gerontology. Jill’s first job in the Senior Care industry was as a Marketing and Activities Director at residential care homes. From there she fell in love with the concept of having care, compassion, socialization and security under one roof for seniors that otherwise would be alone or in long-term care. From there she explored other opportunities and had a variety of roles through the years as Executive Director, Memory Care Director, Life Enrichment Specialist, and Regional Director of Sales and Marketing. What has always mattered most to her has been her connection with seniors and their families while making a difference in their lives. As a Certified Dementia Practitioner, her most recent venture was opening a Montessori-based Adult Day Center that grouped individuals based on their cognitive abilities and provided a secure environment throughout the day along with meaningful programming. Jill also is a support group facilitator for the Alzheimer’s Association, Mild Cognitive Impairment Groups, and Caregiver Support Groups yt:video:_gmdfrkW2oA _gmdfrkW2oA UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2024-03-04T21:25:51+00:00 2025-06-12T10:47:04+00:00 02/27/24 - Presentation and Q&A with Dr Peter Tass This month we had Dr. Peter Tass as our guest speaker. He gave an excellent presentation and stayed to answer our support groups many questions. Dr Tass investigates and develops neuromodulation techniques for understanding and treating neurologic conditions such as Parkinson’s disease, epilepsy, dysfunction following stroke and tinnitus. He creates invasive and non-invasive therapeutic procedures by means of comprehensive computational neuroscience studies and advanced data analysis techniques. The computational neuroscience studies guide experiments that use clinical electrophysiology measures, such as high density EEG recordings and MRI imaging, and various outcome measures. He has pioneered a neuromodulation approach based on thorough computational modelling that employs dynamic self-organization, plasticity and other neuromodulation principles to produce sustained effects after stimulation. To investigate stimulation effects and disease-related brain activity, he focuses on the development of stimulation methods that cause a sustained neural desynchronization by an unlearning of abnormal synaptic interactions. He also performs and contributes to pre-clinical and clinical research in related areas. yt:video:UWKP9OXLoYU UWKP9OXLoYU UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2024-02-02T22:30:34+00:00 2025-06-09T17:24:44+00:00 01 23 24 - Interview with Danielle Frain This month we had the privilege of a visit from our special guest Danielle Frain, PT. DPT. As a physical therapist, she discussed her specialization in neurological conditions and the importance of neuroplasticity in treating patients with various diagnoses. She stressed the need for early intervention in Parkinson's disease, focusing on fall prevention and the benefits of exercise. Danielle also highlighted the role of total body wellness, including factors like sleep, nutrition, and social health on physical ability to move. She emphasized the importance of seeing a physical therapist every six months for an assessment, followed by a community-based wellness program. yt:video:tIeLt9nPJrY tIeLt9nPJrY UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2023-12-06T21:50:50+00:00 2025-06-06T23:13:41+00:00 11/28/23 - Interview with Kanwar S Bhutani This month we had the privilege of a visit from our special guest Kanwar S. Bhutani. He was one of the first people in the world to get access to the special vibratory gloves developed by Dr Peter Tass at Stanford University. He tells us of his personal PD journey, how he got to use these amazing gloves and the incredible impact that they’ve had on improving the quality of his life. It's a very inspirational interview for a very promising treatment that hopefully will get FDA approval sooner rather than later yt:video:5jwXmkPc5mY 5jwXmkPc5mY UCqBZwulTA-5rkXiHHKjWKSA Training Wheels Off Parkinson's Support Group https://www.youtube.com/channel/UCqBZwulTA-5rkXiHHKjWKSA 2023-11-10T22:18:59+00:00 2025-06-07T10:53:17+00:00 10/31/23 - Presentation and Q &A with Dr Daniel Stein This month we welcomed Dr Daniel Stein to our support group as our monthly guest. As we learned, for more than a quarter of a century Dr. Stein has used his medical training in neurology to assist patients in their journey to greater health and well-being. After his presentation he genrously stayed in the meeting to answer all of our members questions. We whole heartingly thank him for coming to our meeting.