yt:channel:UCDDbXGwGowQZYRmo1Tl_sHw UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2011-08-17T08:54:45+00:00 yt:video:rXN3oP0vRj8 rXN3oP0vRj8 UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2017-06-23T11:53:17+00:00 2017-06-29T20:42:42+00:00 Marsha Hansen's Tribute for HHT - This Little Light of Mine an amazing tribute from Marsha Hansen for HHT! Check out her special announcement, and visit the link below to see her song on iTunes! https://itunes.apple.com/us/album/this-little-light-of-mine-feat-the-dream-band-single/id1251544670 yt:video:U6ApfqI7oAo U6ApfqI7oAo UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2017-03-23T00:37:35+00:00 2017-03-24T19:04:48+00:00 An ENT Case Study - Hereditary Hemorrhagic Telangiectasia Join Drs. David Poetker and James Gossage as they present two challenging cases of patients with HHT. They will then address audience questions regarding HHT management. yt:video:aMVhwNCWb4o aMVhwNCWb4o UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2017-02-24T01:26:34+00:00 2017-07-01T13:14:08+00:00 HHT There’s an App for That Join Dr. Jeffrey Terrell to discuss the exclusive HHT app being developed by his Michigan team. In the near future patients can track medical treatments, test results, and nosebleed frequency as well as get personalized notifications and reminders to help them manage their HHT. The app will also provide access to Cure HHT educational information on their mobile device. yt:video:hFXcSl4CvxU hFXcSl4CvxU UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-12-21T15:41:12+00:00 2017-04-27T02:52:04+00:00 Meet HHT Next Gen You can ensure the future for HHT Next Gen today. TOMORROW is the last day to double your donation to Cure HHT: http://bit.ly/2ffzG4q yt:video:9sYUSoIr_Vg 9sYUSoIr_Vg UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-12-21T15:07:53+00:00 2017-01-17T20:19:20+00:00 Dr. Scott Trerotola - HHT Centers of Excellence Give TODAY to help Cure HHT improve access to HHT treatment: http://bit.ly/2ffzG4q yt:video:UcQTEv7wsP4 UcQTEv7wsP4 UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-12-16T19:21:44+00:00 2017-01-17T20:19:51+00:00 Whitney Wooderchak Donahue - The Future of HHT yt:video:Nw6TI-FHZB8 Nw6TI-FHZB8 UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-11-18T15:37:44+00:00 2016-11-18T15:55:50+00:00 My Possibility Movie It's your #HHTPossibility that fuels the work of researchers and doctors across the world. Share yours at https://directory.curehht.org/possibility/ yt:video:izWHPB86tQ0 izWHPB86tQ0 UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-10-14T18:45:30+00:00 2016-10-14T19:45:00+00:00 David Riggans GA Walk yt:video:7zm3gwF33IM 7zm3gwF33IM UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-09-22T19:03:34+00:00 2017-03-23T07:44:29+00:00 Cure HHT 2016 Tri-State Golf Classic It only takes 18 holes to make a difference. Swing FOUR a cure! #curehht yt:video:t_F7XT87LZs t_F7XT87LZs UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-08-19T19:21:16+00:00 2016-08-19T21:16:41+00:00 Black Family Wants a Cure for HHT Possibly the cutest Cure HHT video we've ever seen. Thank you Black family for making this. Contact lauren.linhard@curehht.org about making your own. yt:video:jd2OuPO3_Ro jd2OuPO3_Ro UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-08-04T14:40:27+00:00 2017-07-03T01:18:41+00:00 Cure HHT Team GA yt:video:uoHSAu4HtuI uoHSAu4HtuI UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-06-20T15:02:38+00:00 2017-05-04T09:58:58+00:00 Are you HHT Join the #AreYouHHT video by printing your own hashtag (http://bit.ly/28JkV6S) and video directions (http://bit.ly/28JpQ9H). We can't wait to see your submission! Another great way to celebrate HHT Awareness Month. yt:video:ic5cVw_wWWs ic5cVw_wWWs UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-02-17T17:05:39+00:00 2017-04-25T05:26:04+00:00 Cure HHT Valentines 2016 yt:video:VsXiwTUHfRA VsXiwTUHfRA UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-02-17T14:06:59+00:00 2016-02-17T14:06:59+00:00 2016 01 13 19 00 Lay Down the Law with Cure HHT Join Cure HHT Executive Director Marianne Clancy and Legislative Advisor Mark Vieth for a behind-the-scenes look at the HHT DATA Act. Learn what passage of the act would mean for you, what progress has been made since the act was introduced this past April, the most recent push for senate sponsorship and what you can do to lay down the Cure HHT law. yt:video:Uwqw6jkjN8M Uwqw6jkjN8M UCDDbXGwGowQZYRmo1Tl_sHw Cure HHT https://www.youtube.com/channel/UCDDbXGwGowQZYRmo1Tl_sHw 2016-02-08T18:35:14+00:00 2017-06-29T20:43:09+00:00 Cure HHT Meet and Greet: Marianne Clancy Meet Cure HHT Executive Director Marianne Clancy. She has been with the organization for more than 20 years. She started as a patient seeking information and grew into the volunteer president before being named Executive Director.