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Emily: Friedreich's Ataxia

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Uploaded by on Jun 1, 2008

Emily before and after being diagnosed

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People & Blogs

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  • Thank you for putting this on youtube, it offers others of us with young girls facing progressive ataxia info. God bless and keep your child. Christy - Amy's mom

  • SE LO QUE CONLLEVA ESTE PROCESO, PUES HACEN A PENAS 4 AÑOS QUE ESTOY BUSCANDO UNA RESPUESTA PARA MI HIJO DE 15 AÑOS Y HACE A PENAS 1 1/2 AÑO LE DIAGNOSTICARON ATAXIA CEREBELOSA. UUUFFFF!!! NO TENGO PALABRAS...

  • Thanks for sharing.... usually we search for this type of stuff when we are trying to figure out our own child's issues. We know he has ataxia - we are still in the long phase of diagnosis... trying to determine why or which kind.

    Emily is beautiful! Thanks for sharing your story.

  • Gracias por regalarnos tus sonrisas, un beso enorme desde España.

    Thank you for your smile, a big kiss from Spain ;)

  • wow that girs it is a beatiful angel!! 

  • I can honestly say that this brought tears to my eyes.

    I have FA too. I'm going on 15 years old, and so far I've been lucky enough to stay mobile so far. You're an inspiration to me. I don't know how many times I've just felt like there was no reason to smile anymore. But seeing you smile, it inspires me to go live my life and not care what anyone says. Thank you. x

  • to Emily : I hope you feel better and you success in your life .. i have the same problem , friedrich ataxia ...myname is ahmad ..i`m from israel .. 21 years old ... i hope that we talk together and share our feelings and hurts :)..you are wonderffull girl ... i wish you the best and i pray all time that the doctor make a treatment to us :) thank god for everything

  • I was with a young lady like yourself earlier today and like you she still smiles. She was having a bit of a bad day but we had a bit of a laugh as well. (which was nice). Our dogs adore each other, they play fight all day, it cheers us up. Love the music by the way.

  • Doença maldita!

  • i have amarinesco sjogren syndrome its a metabomic myopathie only 6 famylies in the worls i am fithing angainst this deasease i have lost 3 childs but now i have a child don't stop the war and fight angainst this genetic deasease i am with you

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