before and after brain surgery for movement disorder

This video has some clips showing my movement disorder, myoclonus, in may 2008. On may 22 2008, I had surgery to remove a part of my brain that was causing the movements. The other video clips were taken six weeks after the surgery. I had the surgery at the Mayo Clinic in Rochester, Minnesota.

Category:

Education

Tags:

• health
• medicine
• movement
• disorder
• myoclonus
• myoclonic
• jerking
• brain
• surgery
• mayo
• clinic

[c10udd]

yeah ure alright! awsome results¡ but i have a question, when was the first time u had those involuntary movements???

[chloew90]

it started when I was 17

[stracinsrt4]

Did the movements occur while you were trying to sleep? I think that would have driven me nuts.

[chloew90]

The movements got worse in the evening, and I was still jerking when I would try to fall asleep. But they would start to get slower and calmer as I relaxed, and I guess eventually I would fall asleep between jerks, and once I was asleep they would be gone. Some nights when they were bad I would have trouble sleeping, but it could just as well have been anxiety, which as well as keeping me awake can make the jerks worse. But I really needed sleep; all that jerking was like a constant workout.

[mindygrahamkrauth]

hey chloe...! i am an illinois girl too!

do you remember the name of the procedure you had ?

i am only asking because i work in surgery, and find your outcome to be amazing.

[chloew90]

Thanks! The surgery this video is talking about is a resection of a heterotopic nodule in the right lateral ventricle. Before that I had a partial right parietal resection. I'm not sure if I said the names of those right. In each surgery, they really only took out a tiny bit.

[overclockedamd123]

What a beautiful girl.  Hope the best for you.

[kyl75]

im glad the sergery helped you out

you look like your better

[Wurstvogelify]

"And I'm playing a typing game...because I can." That made me smile, such a small sentence with so much triumph and happiness behind it. And even though I don't know you, it made me feel very glad for you (^.^) Best wishes!

[betatestersrule08]

I'm glad your doing well.......

[andregyn62]

Congratulations! I wish all the happiness in the world for you, you very pretty! thousand kisses!!!!

[pitpalak]

@chloew90 ok u answeared my question, but did u had an accident or they came suddently?

[shareyourfood]

Awww this made me cry! I'm so happy for you, you're such a lovely beautiful happy girl :)

[canadianlover2007]

Congrats having the DBS ,I assume, I too had it done in 2004. I only wished more were able to have this done. So they too can be free! 8-)

[mrbluenun]

Hi chloew90,

I am so pleased your surgery seems to have helped.

take care,

mrbluenun

[mazfraz83]

Chloe, your story inspires and gives hope to so many individuals who continue to have symptoms of myclonic dystonia similiar to yours. My son has been diagnosed with myclonic dystonia. You had your surgery at the Mayo Clinic in Rochester. Could you share how we could fasttrack the diagnosis and surgery process? Medications (clonazepam, botox,etc) have not helped. Thank you.