Lebers Hereditary Optic Neuropathy Documentary
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Oh wow. I also have optic neuropathy but it is not genetic. I got it from testing positive for tb and given the medicine. I did not have any form of tb. I was on the medicine for two weeks and my optic nerves were damaged. It's good to spread awareness of these rare eye conditions.
whendomerecty 1 month ago
im curious as to where he said h got the equipment from? i didnt recognise the oganisation or if he was referign to a college / uni, any help?
Rev0UK1 3 months ago
This is really alarming. I have an eye disorder and Ive seen enough doctors across the country to seriously drive anyone crazy. I'm having my blood tested in a lab across the country and we will see if its Lebers. If it isn't this then the myriad doctors are going to pursue it as though it is some form of advanced glaucoma. Its really very alarming and I still have 4 weeks until the testing is done. Its "flared" up lately and I fear that my central vision will be no more.
deathtomylungs 1 year ago
Hi everybody, I Also Have LHON i was the first to get it f out of my 3 cousins... it happen for me in 7th grade so pretty much when i was 12 i am now 18 an its been stable since i first got it... i pretty much do the same thing i did b4 i lost my sight, i play video game n football... but yea... my cousin (both of my cousins) went to china an did stimcell... its slowly showing a difference that it is kinda helping
SHaDowiZWiCKeD 1 year ago
My son is affected by lhon. I am praying for a cure for him and everyone affected by this.
luciagillis 1 year ago
My eyesight also got fucked by lhon i was also 13 and it was also in a spanish lesson
Bandelero297 1 year ago 2
There is currently gene therapy research underway in Miami at the Bascom Palmer institute.
Please contact them at link above to participate. Let us all pray they are successful. Keep the faith.
maryamdnj1 1 year ago
Very worrying, this is in my family.
iLDNdave 2 years ago