My grand mal seizure - October 3, 2007

I've posted this in honor of my ignorant Bible-thumping coworker who believes seizures can sometimes be caused by demons.
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I have halted comments on my video because everyone is complaining about the nursing staff. I AM VERY PLEASED WITH THE WAY THE NURSES HANDLED THE SITUATION.

I'd remove the video altogether because I like the nurses so much, but I have had several people tell me things like:

"I never knew what mine looked like. Your video helped me understand."

"May I use your video in my PhD thesis?"

One woman even said to me: "None of the doctors believed me when I said my husband was having seizures. I showed them your video, because it is exactly what happens, and he's now been diagnosed with epilepsy."

The one man's diagnosis made the initial pain after surgery worth it. I'm sensitive to morphine, so my initial recovery was very painful. 10+ pain. There comes a point where pain can't get any worse.

This is a testing and recovery ward specifically set aside for people with epilepsy. I was on this ward for a total of one month during my treatment: three of these tests and recovery from three surgeries. I'm familiar with, and like, everyone in this video.

The first woman in the video is a SITTER, not a nurse. She's an untrained person only there to alert the nurses to a seizure should I be unable to. It is required to have someone else in the room 24hrs a day during the test to alert the nurses should I have a problem.

This seizure ripped the shirt into shreds on the lower right side.
I remember thru 1:20 then the next thing I remember is 4:30.

May 2, 2007 - first surgery (right hippocampus removal and partial amygdala removal)
Dec 10, 2007 - second surgery (intracranial EEG grid placement)
Dec 17, 2007 - third surgery (grid removal, anterior right temporal lobectomy, and more of the amygdala scraped away)

Category:

Nonprofits & Activism

Tags:

• temporal lobe epilepsy
• grand mal