Dysautonomia & Sensitivities

A question for all of those Dysautonomics and POTSies out there regarding sensitivities

Category:

People & Blogs

Tags:

• Zeb
• Scootchinman
• Dysautonomia
• POTS
• Invisible Illness
• Sensitivities

[duckyone]

I'm lucky to have what seems to be a milder case of POTS. I am sensitive to gluten, and have trouble regulating my temperature sometimes, but that's all when it comes to sensitivities. I work in a busy retail store so it doesn't seem that the bright lights or lots of people effect me too much. I just hope I stay like this and don't get worse. :)

[louiejimmie]

I'm sensitive to all the things you mentioned. I'm also allergic to a great many medications. Twelve years ago I wasn't allergic to anything that I knew of. And as a couple of people have mentioned crowds are a real problem. The noise and movement of a large crowd makes me want to lie down and close my eyes -- instead I get away from the crowd as quickly as I can.

[socobella]

Yes! I'm sensitive to everything you mentioned. I also have a difficult time seeing in the dark. I can't handle the heat at all either.

[ZebraLifeEDS]

im supprised ur a guy with POTS! glad to know girls arnt the only ones with this :) good luch to you :) i feel ur pain :) Light does the same to me and sound! always sence i was a baby i hated sound tho

[casserilla331]

Thanks for the video! I am sensitive to heat but not as bad as I used to be, sensitive to a few of the things you mentioned but again, they're improving. I learned that yoga is a trigger so no more of that. I have actually gotten a handle on several of my sensitivities since finding The POTS Treatment Center in Dallas, TX but there are a few things that I deal with but high sodium diet is awesome and compression hose are life-savers! Good luck!!

[KristaLevy]

I have generalized dysautonomia, POTS, yada yada. I'm 41. I've been disabled for seven years. I'm glad you posted this- I was wondering about some of these hyper-sensitivities. I'm sensitive to sound. Light. Florescent lighting. Standing. The television. Eating. Walking. I'm sorry that you have this, kid. Sending a hug.

[cobaltgnome23]

i get sensory overload now(cant really go outside my house anymore), can not excersise, despise trying new meds, became allergic to grasses and cats, and can no longer eat tomatos, eggs, or nuts

[TradGal]

I think that's what dysautonomia does to you... it makes your whole system hyperactive and extremely sensitive to anything coming into your body. I have MVPS, and when it started, all of the sudden I became sensitive to medications. My body freaks out over flashing lights now, as well as temperature, certain smells, and loud sounds. I also have TONS of allergies that I never had... grass, trees, dust, cats, indoor mold... to name a few. Also gluten and other foods. So frustrating!

[thispoetgirl]

The things you described are all sensitivities for me. I've always been this way, for the most part. I think I have had POTS since I was a kid, maybe born with it...runs in my family. It used to be much milder until nerve damage in my leg and a bout of Lyme triggered it into overdrive. Now it is completely horrible.

[neuropoet3]

I have Dysautonomia (along with CFIDS, Fibro and Hashimoto's) - and I have ALL the sensitivities you mentioned.... medications are a nightmare. As of now the only med I tolerate is the thyroid hormone - everything else not only gives me side effects, but often has an opposite effect from what would be expected. Lights, sounds, crowds, everything is overwhelming... pretty frustrating.