The Hereditary Neuropathy Foundation presents: Charcot Marie Tooth Pt. 1

Charcot Marie Tooth Disease - Help Find A Cure (part 1)
The Hereditary Neuropathy Foundation (HNF) is a non-profit 501(c)3 which raises awareness, funds scientific research, and educates the medical community as well as the general public about Charcot-Marie Tooth disease (CMT), offering people with CMT, and their families, medical information and emotional support.

Category:

Nonprofits & Activism

Tags:

• cmt
• neuropathy
• hereditary neuropathy
• research
• charcot
• marie
• tooth
• disease

[tenzime]

I have CMT! Thank you for posting this!

[jamaigloo]

my sister has it, i got into med school so that i could at least find a better treatment for the disease.

[ragtopman242]

Can anybody please direct me to part #2.

[29Mgordon]

My Dad, my three older sisters, and I all were diagnosed at birth. It made our childhoods really very hard. We all went through surgery, teasing, and jealousy of being "normal". I hate this disease, but it has opened my eyes to all the things I CAN do. My 3 year old niece now has it and must wear braces in her shoes to walk. This disease NEEDS more attention. I hope this documentary will open peoples eyes to this debilitating disease.

[atm914]

Thanks for the post. We appreciate the comments. Checked out your you tube channel...Queen ROCKS!!!

[atm914]

Appreciate your post and dig Queen too!

[DAH24HRS]

Thankyou for this video, I can relate to everyone in it, very touching.

[kimmyfreak200]

ive never cried before when it came to my disease until now hearing others suffer. i have a pretty severe case but i can walk i use a crutch and people dont understand it they think its soooo weird, but my scoliosis is bad, cant use a cain. either crutch or wheelchair. but i walk barefoot i fall hard and fast , i continue to take vitamins and start an exercise program. i fully believe soma is bad for CMT... its a powerful muscle relaxer. also people said i changed in my appearence even my face.

[gokartkylee]

i have CMT also, and it is everything and more of a struggle everyday.

[greenjeep84]

I also have CMT.

[beatlesongs]

I have CMT also...

[Thebilducia6]

i have CMT also. I walk on my ankle now. I have had alot of surgeries including a hip replacement. ty for posting this.