Montel Williams Goldenhar Syndrome guest Mandy Kemp
Top Comments
All Comments (40)
-
I have goldenhar but I am very lucky I have a small ear tag and missing a muscle to turn my eye but I don't have the facial deformities
-
I have Goldenhar too, but I am blessed beyond belief that I only have a malformed left ear. I have a YouTube channel and I make music, check it out!!
-
i know these crack heads that just had a baby and it looks like it has goldenhar but idk they say its something else
-
Uh... what's with the audio? o_e
-
My daughter was born with this syndrome. She is now 7 weeks old. She has a deformed ear, coloboma of the eye, one eye is smaller and her pupil is keyhole shaped in that eye, her spine and jaw is misaligned, and her left naustral is almost closed. Everything that is wrong with her is on her left side of her face. She also had 2 holes in her heart when she was born, that are now closed. We are almost positive that she is deaf, and possibly blind. She has not undergone any surgeries yet.
-
My daughter was born with this syndrome. She is now 7 weeks old. She has a deformed ear, coloboma of the eye, one eye is smaller and her pupil is keyhole shaped in that eye, her spine and jaw is misaligned, and her left naustral is almost closed. Everything that is wrong with her is on her left side of her face. She also had 2 holes in her heart when she was born, that are now closed. We are almost positive that she is deaf, and possibly blind. She has not undergone any surgeries yet.
-
@katia123234 I think that it's great that your experience has been positive, but you shouldn't say that for this girl not to focus on it is bad. She may have had a different experience and that maybe it's not for us to say if it's good or bad but to understand.
-
Mandy, you're gorgeous!
-
Nice surgery! That girl has at least somewhat of a decent face.
There are people with G syndrome here on YT that don't even have a face, and quite honestly, very difficult to look at.
-
Thanks for this posting. my Daughter was born with Goldenhar, and it's great, as a parent to know that she's not alone in having this condition, and i'm not short of support xx All the best to all those with the condition. I truly know how frustrating all the hospital visits are x
I have Goldenhar syndrome. I am 19 years old and I have been told I have a mild case. But its is very noticable. I am kinda upset with this movie, I hate how people focus on how we get teased and how that hurts us. I don't know about you but I rather have someone say hey your ugly and get it over with than hey it only matters whatin the inside...Thats the kicker there. I am insanely happy and I love my life to bits. Its not fair what happend to us, but we're beautiful and strong people. Thanks!
katia123234 3 years ago 12
wow - i have a mild level of goldenhar syndrome, it was hard for me as a young child. I went through a a lot of surgery and I never got to know anyone else who had goldernhar. This MONTEL segment was really inspirational and touching..that young girl and her mother are so brave, and I know what they have been through.
fartybunny 4 years ago 3