How Ulcerative Colitis has changed my life 3 of 3

My continued story about how I deal with UC

Category:

Education

Tags:

• Ulcerative
• Colitis
• Ulcers
• UC
• Crohns
• colon
• cancer
• weight
• loss
• stomach
• pain
• remicade
• imuran
• 6MP
• prednisone
• asacol
• depression
• hospital
• IV
• blood
• severe
• insomnia
• sleeplessness
• relationships
• breakup
• normal
• intestines
• abdomen
• steroids

[redwriter1]

How are you? My son had this when he was 17.. and we went on the SCD diet and it totally worked. He is 19 now and eats whatever he wants.

[timskinner23]

@redwriter1 I am doing ok. I am getting remicade infusions more frequently, and they are working but i can tell the effects wear off quicker. overall i would say i am ok. I have tried many different diets, with none giving me any noticable advantage.

[timskinner23]

So far the remicade seems to be working ok. I hope to do a follow up video soon but have been ridiculously busy with school but am on break now. I have noticed the affects are starting to wear off quicker between doses so i need to get my doses at every 6 weeks instead of 8.

[MsZiggi1]

timskinner23 Oh hun, ur story is my story! I'm in my mid 30's & was diag in 10/07. Steroids were the only thing that worked, til the last 4 months my body just was used to taking them. I was on remicade, it made me sicker. I had surgery 3 weeks ago, was scared to death and didnt want it, but had no choice. The swelling was too bad. I had a colectomy on 5/28/10 and feel revitalized!! I have a iliostomy bag now w/the choice to go back, get reconnected in 6 mos. Plz think about surg.

[timskinner23]

@MsZiggi1 I am definitely considering the surgery. I am not getting the same benifits with each infusion as I once was. Also another reason to do the surgery is because I am only on my parents insurance for another 3 years and have tried to get my own insurance but am constantly being denied because of ''pre-existing'' conditions.

[timskinner23]

I took vancomyacin when i was first diagnosed and had c-diff. it didn't help me then and they had to give me flagyl

[gogovideo10]

I'm currently on 35mg of prednisone and 1g of mesalazine 3 times daily and i'm so scared that once I stop taking the steroids that i'm gonna get sick again, but for the moment it's only been 3 weeks and i'm feeling so much better, but I hope I don't end up the way you did!

I'm glad that i'm not the only one going through this disease though, thanks for making this video

[lilfreeway21]

did you ever try taking probiotics? Did that help at all. Is there anything that has helped you at all wether it be medecine or holistic?

[lepetitpoulet]

Thanks dude! Feels great to hear others wih the same condition. You're right, people without UC can't understand. Been diagnosed 4 months ago (age 30). Have been put on asacol for a year and prednisolone for 8 weeks (40mg a day for a week, weaning down by 5mg per week down to 5mg a day the last week).

My weight is finally stabilised. Going "pit stop" 2-3 times a day now, a lot beter, but had to change jobs to something i can do from home. Have no idea what the future holds. Big love to UC peeps

[blindmellonchittlen]

Hey buddy, I was there about 1984, im 51 now, laying in bed thought I was almost dead. Did you ever try Rowasa suspension Enemas. My GE, told me storys how he had patients on intravenious steroids and no response, given the enemas at night before bed, uc completely cleared up. Gone! Just consider it , another thing is one of my best buddies almost died from UC, once he was under control , but still had symptoms, he started eating carrots, till this day hes been symptom free. Says hes cured.

[custardsucker]

hope it works out 4 u man i got the same probs good luck and thanks 4 sharing ur story

[tardis81]

Thank you for sharing your story. I've suffered with UC for over 10 years and fortunately I have had periods of little to no bleeding, but it seems like every year I have one or two major relapses in which I can eat little to no food and have to have a straight liquid diet. It's very discouraging when going through the symptoms and trying to explain to people what it's like, so I find it very encouraging to know I'm not alone. I hope the treatments work for you.

[undeadninja]

I'm going through the same things you are man, although my diagnosis is Crohn's disease. I just started taking Imuran, and will be injecting myself with this drug Humira, which is going to be a big hassle. It's the same class of drugs as Imuran (immunosuppresants). I'm taking 60mg of prednisone also. I just want get this in remission and keep it there. Have you ever gotten sick or infections from being on the Imuran? They said to be on the lookout for Tuberculosis and stuff like that.

[redwriter1]

Well we didn't try many diets, we just tried this one from the very beginning. The book was written by a biochemist who really knows her stuff. I would hate to take shots and drugs for the rest of my life. Just a thought.