Chronically Hopeful [The month of December]

Hey guys! Here are some clips I filmed in the month of December. Hopefully, sooner or later, I'll be able to get these videos up faster (and not a month later lol.)

I have so much more to update you on. A lot has already changed since I filmed this.

I hope you're all doing great and that you have a wonderful 2009. I'll have another video up soon!

XOXO, Kyli

Strong Enough to Break-Hanson
Manic Monday-Bangles
Talk of the Town-Jack Johnson

Category:

People & Blogs

Tags:

• pots
• chronic illness
• chronically sick
• kyli
• life
• vlog
• december
• dysautonomia

[TheKorrey]

Wow, 2009! I just realized how old these video's are, as I go through them I feel like I am learning I feel more hopeful, I hope as i watch these I get to see you were able to reach some of your dreams and that you got better,hope so! I am so sick right now. I have had no diagnosis 4so long, no one could help me. I saw an oncologist yesterday and he mentioned this and I looked it up and found you. I am living this, I can't wait to keep watching, God bless, THANK YOU!

[Amanda0517Melissa]

My daughter is on the 504 disability plan and is desperatly trying to finish high school....and POTS just keeps on flaring . We TOTALLY understand the struggle with this INVISIBLE ILLNESS and how people perceive "how sick you really are" . It drives me crazy!

[SharkBateNait]

this is fun

thanks for the tour of your place, still living there?

I like the guitar at the end, you have a knack for musictracks

I have noticed that you "never, ever complain" ;-P haha

I'll finish up that email soon, I promise :)

-Nate

[MiraculousMoments]

What college are you attending?! I absolutely loved the ending part. You have such a good spirit and attitude about all of this. I applaude you! :)

[tophatkat11]

Hey Kyli,

I totally understand talking to college officials and having to tell them that you are disabled and them looking at you like you are crazy. Just because we look normal on the outside doesn't mean we aren't disabled. It's been really hard to communicate to so many people what it really going on in my body.

It is so great that you got to go on both of those trips!

I know how hard it is to travel when the symptoms are not cooperating,

I hope everything keeps going well.

Katherine

[someluckystar]

Hey babe-- I can totally sympathize on the driving thing-- while i absolutely love it i didn't get to do it for about six months since i was sick and man did it drive me crazy! (no pun intended) -- you'll get better at it and over the fear (the last accident I was in involved a guy falling asleep and crossing the center line, so that was a bit frightening, but now I drive no problem :) )

[lauriloubird]

hey hon you would qualify for easter seals and they help you with overwheming chores and errands and the walker with bench help to sit quickly when really light headed just thinking of you sweets the Easter Seals have been my angels and it is all covered....and they cover the stuff insurance and regulare medicaid medicare covers check into it

[alexaralu]

hy kyli glad to see you had a good december , take it one stepo at the time , and i thinck you shoud do a dance so we can see you to . Hope everthig goes form this good to greate . Loots of hugs.and have fun dirving , alexa

[radlikemad]

Awesome video Kyli! Good luck with the driving, I'm currently taking lessons and i know how nerve racking it can be! haha

[Redshadow54]

Hey Kyli,

I am so sorry you still are having the crappy symptoms of POTS! I also have not gotten any better and my Doc put me on pyridostigmine as a last resort. I am having too many severe side affects from it so I had to stop taking it.

I can't imagine going on a trip and not being able to breathe is super scary. I get it time to time, luckily not everyday.

You take it easy (as much as our autonomic systems will allow) :(

Sending love, hugs and God Bless you!

Bon