It Was Good While It Lasted!
Loading...
Link to this comment:
Uploader Comments (kaazoom)
All Comments (11)
-
cont... Your walking looks very like mine when it is bad. The problem is that those of us with such conditions are unable to access the real testing and treatment that we need unless we have money. I do find that if I try to do too much things get worse - more activity = more physical symptoms - this is the exact opposite of psychological stuff isn't it - if you are depressed etc physical activity helps... I think true ME and MS are very similar in many ways symptomatically.
-
Hi Paul,
Now I have got beyond the years of being bedridden in a dark room I have the same variability of symtoms - sometimes can walk - sometimes can't get down the stairs, sometimes end up back in the dark room - I know your diagnosis is still unclear and that is the same for everyone who has not been able to have the proper tests - that switch thing is so familiar to me - they say that variability is a defining symptom of ME - who knows...
-
Paul,
I am so sorry to hear the symptoms have returned. it was such a dramatic change.I do so hope that the neurologists can identify what is going on now and that there may be some support they can offer you - better than you have had so far!
Thoughts and prayers are with you
love Lindax
7:45
Neurologist Number 4by kaazoom1,826 views- 4:52
It's Happened again!...Yahoo!by kaazoom1,050 views
- 4:13
They were right! It is all in my head!by kaazoom9,531 views
- 7:07
M.E. And Me Part 2by kaazoom2,487 views
- 4:46
M.E. and me part 1by kaazoom2,303 views
- 4:45
Good While It Lastedby harrypotterlover216423 views
- 8:23
Disappointmentsby kaazoom719 views
- 8:09
M.E. And Me Part 3by kaazoom1,241 views
- 6:16
Referral To a Movement Disorder specialist At last!by kaazoom4,270 views
- 6:56
I Don't Have ME!by kaazoom2,714 views
- 6:46
Hope Tempered By Disappointmentby kaazoom596 views
- 4:44
"It was good while it lasted" TexManiacsby ElUnoProductions1,223 views
- 4:23
My favourite sad song: Brooke White- Smileby Hoangalicious14128,888 views
- 4:51
it was good while it lasted - sally by Hop Alongby deafchildareavids949 views
- 3:46
The Walk - Sawyer Brownby Antreges1,002,549 views
- 4:15
Stephen Hunley performs "Good While It Lasted - Album Release Party @ The Square Roomby StephenHunley528 views
- 2:48
Nat King Cole It Was So Good While It Lastedby musicvideosparttwo1,501 views
- 2:47
Sam & Dave - It Was So Nice While It Lastedby Popcornremo6,864 views
- 9:51
Michael's Funny Feelingsby Ceinmcgill1,915 views
- 5:21
Now I Get Sound Effectsby kaazoom698 views
try to meet god, he will heal you (christain)
HazzMarsh 1 year ago
@HazzMarsh
Hi Hazzmarsh, I am a Christian, and I do believe God heals. But it has happened for me yet.
Paul
kaazoom 1 year ago
@HazzMarsh
Hi Hazzmarsh, I am a Christian, and I do believe God heals. But it has happened for me yet.
Paul
kaazoom 1 year ago
I am very sorry that this has happened - but you always appear so calm in the face of difficulty. I hope the medics have something useful to offer. BW Paula
paula2048 4 years ago
Hi Paula, The strange thing is that since making this video I have had a couple of 'mini remissions' where my walking has returned. These have lasted a day or part of a day then my walking has gone again! It's like someone is turning a switch on and off. I am not sure why this is happening after having so many months without any relief.
Paul
kaazoom 4 years ago