Familiy of Son with Hemophilia (Wilkes) - Featured in White House Video on Lifetime Insurance Caps

The Wilkes family was recently filmed for a White House video on their family's issues with private insurance and lifetime caps. In the video, Nathan and Sonji Wilkes explain the extreme difficulties they have had to face to ensure adequate insurance coverage for their son Thomas, who has severe hemophilia. They describe their ongoing struggles with insurance companies and how after Thomas hit the $1 million lifetime cap on his insurance plan, a social worker suggested that Nathan and Sonji get a divorce so Thomas could get onto Medicaid. Nathan and Sonji eloquently describe the financial and emotional toll that Thomas' lifetime cap has placed on their family. "The illness? Honestly, a piece of cake compared to all that," Nathan said, referring to their lifetime cap issues.

Category:

Nonprofits & Activism

Tags:

• Hemophilia
• Bleeding
• Disorders
• Nathan
• Wilkes
• Insurance

[FortNikitaBullion]

What's this family's contact information I'd like to make a donation

[dublindaemon]

This just breaks my heart. I have a bleeding disorder as well (VonWillibrand's disease) and I've capped out multiple insurance plans. I've now been deemed uninsurable. How can the people in this country who trumpet arguments against a national healthcare plan sleep at night. Your fellow citizens, fellow human beings, are suffering. We lose sleep, lose our homes, live in fear, and suffer needless pain, all so you can protect us from "socialism"?

[rlmotionpictures]

$1,000 a dose? I know a family who's paying $20,000 a pop. Although, i don't know the full details on what they actually pay.

[vidy95]

@tonsoffun49 yes me too, at 2 and 2 days i need to get a injection in my arm or feet since i born

[videolver2]

what was the symtoms?

[tonsoffun49]

I am 20, I have Sever Hemophilia A (8) and to be honest, this just scared the crap out of me. I was kicked off my Moms insurance when I was 18. I was put on BCMH which will cover me til I am 21. I just got a full time job and while I was going over the benefits I saw that my lifetime cap will be $2,000,000.00. This is a real issue and I can't believe people just don't see how bad it can and will be. I wish the Wilkes Family my best and hope that everything works out for them.