Daniel's movie Raccoon Roundworm Encephalits, Cortical Blindness and Infantile Spasms

My 21 month old son is cortically blind from Raccoon roundworm encephalitis, and has Infantile spasms, from the rarest type of epilepsy and the rarest parasite. Daniel developed normal and healthy, he could run and talk, till he ingested these miro-eggs at 14 months old Sept.12/08, that hatched in his body and eat half his brain, Daniel was never near a Raccoon. He is the 15th person in the world diagnoses with raccoon roundworm, and the only case that did not go into a coma, thank god, but he went blind and when we brought him home he could not crawl, walk,see nor talk, Daniel will never be the same boy again, he was put on Albendazole and prednisone for 3 months, after 7 month of retraining his brain, He can sit and walk holding my hand, he can see alittle now, navagating tho clutters with his blindspot. As for his development Infantile spasms uncontrolled, he's on Keppra and Vigabatrin. We are very lucky and thankful that Daniel is with us today, We Hope and pray someday he'll be able to see, or walk or not
have a suffer from seizures.
Learn more about Daniel, Raccoon Roundworm and Infantile Spasms at: http://danielchevrier.blogspot.com/

Category:

People & Blogs

Tags:

• Daniel's
• movie

[diamonddill]

I agree.. he chose you because he knows you are strong and you will be able to give him the love, the care and the patience.

(This is diamond_dill's wife--Adam).. My name is JOyce, and i am Ethan's mom.

Our son was diagnosed of Infantile Spasm but he is ok now. I think Adam found an acupuncture master in Kuala Lumpur, it seems like he is pretty good.

God Bless Daniel/ and he will be in our prayers. I just hope the nightmare will just go away

[Daniellechevrier]

thanks Joyce

[bedbugsdc]

I could not watch video til end tears clouded my vision. My 2 month old Riley contracted meningitis now she has widespread brain damage seizures and cortical blindness.........wow....your son is beautiful....Riley is my grandaughter.....she is home with feeding tube...........please share what if any other natural approaches you took such as massage accupuncture etc..............

[sirzahur]

I know the feelings as passing from same kind of situation - my son is also suffering with blindness - no walk and no talking and with permanent brain damage - so looking for some stem cell treatment - Can you please let me know where you will do Daniell treatment ?

May God bless him with sound health soon . A very cute baby and a great tribute to your courage as parents . Keep it up and never give up whatever the case . We all have to fight for our kids anyhow .

[alexandraarias1973]

I see that he is very lucky to have you as his mommy.... It takes a very special person to have a blessing of a wonderful child like yours he is beautiful... Keep being strong he will get better with your love and strength... God bless your family.. Even though I see that you are already.... I consider Nicole my biggest blessing she lights up my everyday...

[dollface88469]

this is so sad, but thank goodness for strong moms' like you bless you