How I manage my lymphedema

This is a video on how I manage my lower leg lymphedema. I am not a doctor these are just a few of the things that I have learned on my journey. I hope that it helps others in some way : )

Category:

People & Blogs

Tags:

• Lymphedema
• Living with lymphedema
• Lymphedema management
• Lapband with lymphedema

[peacelovehippychick]

thank you for your video. i have had lower leg lymphedema for 30 years now. my leg looks like a tree trunk. i'm a hairstylist & i love it, but my leg has finally put a damper on my career. the lady who sold me my flexitouch pump said that in medical school, doctors spend an average of FIFTEEN MINUTES learning the lymphatic system! wtf? i've been to so many dr.s over 30 years that i lost count after 50 or so. there really is nothing they can do. nice to see ppl like you speaking out. thanks again

[Marianahism]

@peacelovehippychick HI! Thank you for the nice comment. It means the world to me : ) I think it is such a sad state of affairs when Dr.s know nothing about lymphedema. I was sick and swollen for a looooong time before Dr.s knew what was actually wrong with me and even then - there was not a lot they could even tell me. Mostly, we just learn on our own or from each other.

I think that I am going to do another lymphedema vid soon - there was so much I left out. xo

[geiuy]

@Marianahism hi,i'm quite sure i have a very mild form of lymphatic malfunction.i notice that when i eat lightly or after exercise i feel a lot better,less puffy and my skin gets a better color.is it the same for you?

[Marianahism]

@geiuy Since my lap band surgery I have had no complications with my lymphedema - it has actually nearly gone away completely. When it was very bad I could not exercise at all because I would get swollen, I was in pain & I would get cellulitus. But yes, now that everything has calmed down these things help a lot!

[emergart06]

thanks so much for the video at least I know I am not alone and today I am sick and not happy today I knew I was sick before I really got sick but you're right listen to your body .

much love for ya NZ

[Marianahism]

@emergart06 Thank you so much : ) I hope that you feel much better soon! And you are never alone - feel free to email me if you ever need someone to talk to - marigrrrl@yahoo.com

[GreenEyezLiz]

thanks for sharing, lymphedema does definitely SUCK, been dealing with it for some years not but I did get therapy and im in remission although as you said, it will never completely go away

[cloudninefamof4]

thank so much for sharing your story, I have been suffering from lymphedema in my scalp/had/neck a result from an MRSA infection. I hope that your journey leads you to a place of better health.

[pearlhanna1]

What irritates me is people pronounce lymphedema incorrectly and when my folks do it I get madder. They don't care yet have ideas out their tush which I don't need but don't know how to respectfully say MYOB. Its frustrating. I have night boots from my feet to my mid thigh. I don't make it to the toilet at night and get the pee in my boots so hubby has to get up take off the boots and rinse them; dry them put them back on. Thank goodness I don't have cellulitis or skin breakdown.

[peacelovehippychick]

@Marianahism yay! you're speaking out for those of us who are hiding in the woodwork.

[TheJonellesherree]

I have Primary Lymphedema from my finger tips to the shoulder of my right arm. I wasn't diagnosed until I was 27 years old. All the knowledge about this condition I have gleaned from my own research. I have a compression sleeve and gauntlet and a FlexiTouch pump that I use for one hour once a day.

[thecompressionshop]

Have you tried compression garments? Farrow wraps? These garments cutdown on wrapping time! Good luck god bless!